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Childhood asthma can have a significant impact on nearly every aspect of life. Your personal stories can be a key part of driving the future of research on childhood asthma treatments.

Join Ryan, Shreaya, and Regan in making a difference for kids living with asthma. You can help direct research to improve treatment and quality of life. Share your story about managing childhood asthma for yourself or someone you care for by Friday, Nov. 5, 2021!

SHARE YOUR STORY


As a thank you for participating, you will be entered into a drawing to win a $50 Amazon gift card!

A picture of Ryan Piansky, a person with eosinophilic asthma, with a quote saying, I hope everyone can get on effective asthma treatment - one that prevents asthma attacks, reduces the need for rescue medicine, eliminates the need for steroids.

A picture of Sheraya Madireddy, a person with asthma, with a quote that says, Being along with nebulizer treatments in your bedroom while you hear the whole family laughing (during a holiday reunion) can be very depressing and lonely.

A picture of Regan Lloyd, a person with asthma, with a quote that says, The worst part was feeling isolated and was watching my friends live life through my phone screen while I sat in a hospital bed.

About Little Airways Big Voices

The goal of the Little Airways, Big Voices program is to gather patient and caregiver insights about living with and managing asthma in childhood. It will inform new treatment strategies, get families involved in drug development, and improve health outcomes. The Asthma and Allergy Foundation of America (AAFA), the Allergy & Asthma Network, American Lung Association, American Partnership for Eosinophilic Disorders are working together on the program.

We hosted an externally-led patient-focused drug development (PFDD) meeting on Sept. 20, 2021. PFDD meetings are designed to connect patients and caregivers directly with the Food and Drug Administration (FDA), as well as researchers and drug developers. If you missed it, you can watch the recording.

We will put a summary of all of the information gathered from the PFDD meeting, survey, and written comments into a Voice of the Patient report. The report will help inform the FDA, as well as researchers and drug development companies, on what is important to people living with and managing asthma in childhood.

We plan to share the report in 2022.

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Images (3)
  • A picture of Regan Lloyd, a person with asthma, with a quote that says, The worst part was feeling isolated and was watching my friends live life through my phone screen while I sat in a hospital bed.: A picture of Regan Lloyd, a person with asthma, with a quote that says, The worst part was feeling isolated and was watching my friends live life through my phone screen while I sat in a hospital bed.
  • A picture of Ryan Piansky, a person with eosinophilic asthma, with a quote saying, I hope everyone can get on effective asthma treatment - one that prevents asthma attacks, reduces the need for rescue medicine, eliminates the need for steroids.: A picture of Ryan Piansky, a person with eosinophilic asthma, with a quote saying, I hope everyone can get on effective asthma treatment - one that prevents asthma attacks, reduces the need for rescue medicine, eliminates the need for steroids.
  • A picture of Sheraya Madireddy, a person with asthma, with a quote that says, Being along with nebulizer treatments in your bedroom while you hear the whole family laughing (during a holiday reunion) can be very depressing and lonely.: A picture of Sheraya Madireddy, a person with asthma, with a quote that says, Being along with nebulizer treatments in your bedroom while you hear the whole family laughing (during a holiday reunion) can be very depressing and lonely.

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Comments (2)

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*I am not a doctor*  My biggest concern for children who suffer with allergic asthma is the child might not know how to talk about how their allergies, asthma, are causing them to feel bad, to have problems with their sinuses, nose, throat, upper respiratory tract.  My concern for the child with asthma, what is their indoor living environment?  What is their bedroom like as that is where child may spend most of their life.  Does the child have a Hepa air filter machine working to clean the air?  Bedding, floors regularly cleaned, etc.  Its constant work that helps the allergic asthmatic child be able to function in their life.  I do this work for myself, yes its tiring, I must do it, cleaning, to keep going in life. 

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