Great news! I just started Nucala for eosinophil-related asthma, but my disease (Churg-Strauss Syndrome) also effects my skin and sinuses, and Nucala so far had only been approved for asthma treatment--not sure if it will help my eczema and sinusitis, so I will look forward to this drug's approval.
Can the house dust of a rural farming community hold clues to protecting people from developing asthma ? Researchers from several universities studied 60 children ages 7-14 from two similar, but slightly different, farming communities. Thirty were Amish children. Thirty were Hutterite. These groups are similar in that they share a common ancestry and have remained relatively isolated in their communities after immigration to the United States. They share other factors known to have...
AstraZeneca and its partner Amgen Inc. (Amgen) announced that the US Food and Drug Administration (FDA) has granted Breakthrough Therapy Designation for tezepelumab in patients with severe asthma, without an eosinophilic phenotype, who are receiving inhaled corticosteroids/long-acting beta2-agonists with or without oral corticosteroids and additional asthma controllers.
Researchers have found that temporarily increasing the dosage of inhaled steroids when asthma symptoms begin to worsen does not effectively prevent severe flare-ups, and may be associated with slowing a child’s growth, challenging a common medical practice involving children with mild-to-moderate asthma.
The Asthma and Allergy Foundation of America is training people affected by asthma to learn about research. If you have asthma, or are the parent or caregiver of someone with asthma, learn about the different types of research and how research can help people make future health care decisions. In this interactive training, participants will learn about: asthma management clinical research and the clinical research process patient centered outcomes research how to become involved in research...
What health issue did this study examine? Researchers are studying a potential new treatment option for moderate-to-severe eczema. The drug is called dupilumab. It belongs to a class of drugs known as biologics. Dupilumab is thought to work by blocking the inflammation that causes eczema, or atopic dermatitis. What do we know about this issue so far? There is no cure for eczema. In extreme cases, it can cause bleeding and infections, affect sleep, and hurt one’s quality of life. Current...
The National Center for Healthy Housing is looking for Maryland families with children suffering from asthma to join an important study about indoor air quality. The study looks at whether improving indoor air quality at home can: reduce asthma symptoms reduce asthma attacks improve quality of life for children and their parents This is the first study in the U.S. to examine middle class families in single-family homes. Certain families will receive extensive home improvements—at no...
The Asthma and Allergy Foundation of America (AAFA) believes your voice is valuable part of asthma research. And we want to empower people with asthma, caregivers and health care providers to take an active role in research.
Promoting Asthma Patient Engagement in Research (PAPER) is a new research project from AAFA and the Patient-Centered Outcomes Research Institute (PCORI). Through this project, you can influence research that improves asthma understanding and treatment.
We know that children with pollen food allergy syndrome (PFAS) also suffer from seasonal allergies. A new study being presented at the American College of Allergy, Asthma and Immunology (ACAAI) Annual Scientific Meeting in Houston shows that allergy shots (subcutaneous immunotherapy) can be effective in reducing PFAS symptoms for pediatric patients.
The Asthma and Allergy Foundation of America is sharing this press release from the 2017 ACAAI Scientific Annual Meeting to bring you the latest research news quickly. [PRESS RELEASE] Eczema Plus Family History Can Mean a Longer Hospital Stay for Kids with Asthma Study finds number of allergies don’t necessarily affect length of hospital stay. BOSTON, MA (October 27, 2017) – Asthma and allergies are related, and many people who suffer from asthma have allergies that trigger their asthma.
It’s obvious that asthma affects your health. But how does it impact other areas of your life? The results of our My Life With Asthma online survey showed us how severe asthma can affect relationships, emotions and activities.
Genentech, a member of the Roche Group, today announced that the Phase III CAPSTONE-2 study assessing the safety and efficacy of baloxavir marboxil in people at high risk of complications from the flu met the study’s primary objective, and showed superior efficacy in the primary endpoint of time to improvement of influenza symptoms versus placebo.
What health issue did the study examine? Families who leave a hospital with prescriptions for asthma medicine sometimes do not fill them. That can cause return trips to the emergency room for treatment. What do we know about this issue so far? Some families have trouble filling prescriptions after a hospital visit because of a lack of transportation, time or health insurance. Some hospitals have given patients medicine before they leave in an effort to reduce the number of return visits and...
When Diana Hanley’s daughter Jamie was a baby, she wheezed every time she got sick. She had her first allergic reaction to eggs at 11 months. Around age 2, she was diagnosed with a peanut allergy. And because of constant hives, many foods were removed from her diet. Her family is now part of research to help families managing asthma and allergies. Read Jamie's story.
Earlier this year, we asked you to tell us about your life with asthma in our My Life With Asthma online survey. Your responses gave us insight into your unique experiences with asthma.
Asthma is a chronic condition that can be different for each person. This means there is no “one size fits all” approach to managing asthma. Many people manage it well with the right treatment. But 5 to 10 percent have trouble even on maximum treatment. These people have severe asthma.
Asthma research methods have been changing during the past several years. Research is more effective when researchers and patients work together to better understand asthma and find new treatments. At the Asthma and Allergy Foundation of America (AAFA), we feel your voice is valuable in asthma research. We support efforts to help you be an active part of the future of asthma management and treatments.
Some people are hesitant to participate in research. This may be because of fear of the unknown or from past stories. But today, patients have rights to protect them during research studies. Before you join a study, you will asked to sign an informed consent document.
When you hear about medical research, you probably hear about an organization called the NIH. The NIH is the United States’ medical research agency. It is also one of the top medical research agencies in the world.
When you have asthma, you may have different health care providers who help you manage your asthma. These may include a primary care doctor, specialists and other experts who oversee parts of your treatment plan. Since proper asthma management is key, you need to understand each one’s focus and the role they play in your care. This is the first step toward building a partnership with your health care team for the best quality of life possible.
The Asthma and Allergy Foundation of America (AAFA) recently received a Eugene Washington Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI) to support AAFA’s Building A Scalable Infrastructure to Connect Patients and Researchers (BASIC) project.
[Press Release] PR Contact: Adam Bailine, Vice President, Marketing & Communications (202) 466-7643, ext. 254 email@example.com AAFA Co-Sponsored Report Provides Recommendations for Food Allergy Research, Treatment, and Policy With support from the Asthma and Allergy Foundation of America (AAFA), the National Academies of Sciences, Engineering, and Medicine releases a monumental report that makes recommendations to increase our understanding of and approaches to food allergies November...
There is no cure for asthma or allergies, which is why research is so important. AAFA supports research that will lead to better care, more effective treatments and, one day, a cure. Since May is Asthma and Allergy Awareness Month, it’s the perfect time to spotlight health research and how it can help those with asthma and allergies. On Friday, May 13, AAFA is co-sponsoring a Congressional briefing , From Discovery to Delivery: Research at Work Against Allergies and Asthma . The briefing...
If you’ve never suffered from eczema, also known as atopic dermatitis, you probably aren’t aware of the negative impact it can have on quality of life. The severe itching, redness and excessively dry skin all make life miserable for those who suffer from the allergic disease.
Asthma and Allergy Foundation of America Study Shows a Higher Burden of Disease for Patients with Adult- and Late Childhood-Onset Atopic Dermatitis vs. Patients with Early Childhood-Onset Atopic Dermatitis WASHINGTON, D.C. (March 4, 2018) - The Asthma and Allergy Foundation of America (AAFA) today announced data demonstrating a higher burden of disease for patients with adult- and late childhood-onset atopic dermatitis (AD) vs patients with early childhood-onset AD. These results are from...
The Asthma and Allergy Foundation of America (AAFA) led a research study called Atopic Dermatitis in America . The purpose of this study is to shed light on the number of adults who deal with this frustrating skin condition. This week, AAFA has released early findings from the report. One surprising find from the study was the number of adults with AD who say it is moderate to severe. As many as 40% of the people surveyed said they had moderate-to-severe AD. Through this study, we hope to...
We know that everyone’s asthma is different and we would like to hear about your unique experiences about living with asthma. This research will give us insight on issues affecting quality of life and treatments for asthma. It will also help us raise awareness about living with asthma and improve our education materials. The My Life With Asthma online survey will take about 20 minutes to complete. Your identity and responses will be anonymous. After you take the survey, you can enter your...
The Asthma and Allergy Foundation of America will recap some of the top research on allergies and asthma every quarter. Here is a look at studies reported between April and June 2017. Learn why some children may not respond to asthma treatments, how testosterone may affect asthma and more.
AAFA has joined with four other nonprofit organizations that serve people with eczema to launch “More Than Skin Deep.” This project will inform and shape the development of treatments for eczema. A main part the project is a patient-focused drug development (PFDD) meeting on Sept. 23, 2019, in Washington, D.C.
I was diagnosed with eczema when I was 25 and since then I’ve been dealing with this disease. For me, it has been really difficult to find a treatment that worked for my type of skin and eczema. The treatment that has helped me to heal my eczema is foderma, I recommend it.
Please watch this video and answer the following questions. Your responses are anonymous. By answering these questions, you are participating in asthma research! Access to information helps you be an active part of your medical care. But not everything you read is accurate. Learn some basics on how to find information you can trust. Watch video on YouTube Watch the next video in this series - Understanding Research Outcome Measures
Please watch this video and answer the following questions. Your responses are anonymous. By answering these questions, you are participating in asthma research! This video compilation is 37:20 long and includes all of our project's episodes in one video. If you would rather watch shorter episodes, find them on Why Patient Engagement in Asthma Research Is Important . As you watch the video series, take notes using the Asthma Patient-Centered Research Training Guide . Watch video on YouTube
Please watch this video and answer the following questions. Your responses are anonymous. By answering these questions, you are participating in asthma research! This video talks about what asthma is, what happens during an asthma episode and what asthma feels like. Watch video on YouTube Watch the next video in this series - Understanding Asthma Symptoms
Please watch this video and answer the following questions. Your responses are anonymous. By answering these questions, you are participating in asthma research! Learn the most common symptoms of asthma and how asthma is diagnosed. Watch video on YouTube Watch the next video in this series - Understanding Levels of Asthma
Please watch this video and answer the following questions. Your responses are anonymous. By answering these questions, you are participating in asthma research! A proper treatment plan created by you and your doctor can help you manage your asthma. This can include medicines, avoiding triggers and following an Asthma Action Plan. Discover types of asthma medicines used to treat asthma and how your involvement in research can improve asthma treatment. Watch video on YouTube Watch the next...
Please watch this video and answer the following questions. Your responses are anonymous. By answering these questions, you are participating in asthma research! Triggers can make your asthma worse. They can cause your airway to become inflamed. Find out more about common asthma triggers in this video. Watch video on YouTube Watch the next video in this series - Understanding Asthma Treatments
Please watch this video and answer the following questions. Your responses are anonymous. By answering these questions, you are participating in asthma research! Learn what clinical research is, who conducts research and who can participate. Watch video on YouTube Watch the next video in this series - Understanding Clinical Trials
Please watch this video and answer the following questions. Your responses are anonymous. By answering these questions, you are participating in asthma research! Many people participate in clinical trials to help researchers find new treatments. Find out more about the four phases of clinical trials and their role in asthma research. Watch video on YouTube
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