Thank you to everyone who joined us at the event and participated in the Thunderclap! We've shared some photos from the event in our photo album. Here are a couple:
What a lovely and wonderful way to celebrate Austin's life! My heart breaks for this family, but I am so amazed at how they have given Austin's life meaning. From one mother to another, thank you for turning your grief into action!
Hi Sue and welcome! Did the doc give you an asthma action plan on how to track your symptoms? Do your allergies trigger asthma? Do you have those controlled?
If you live in Texas and are concerned about these incidents, you can visit AAFA's Action Center to send a letter to your state legislators and the school district superintendents. Send a Letter to TX Legislators or the School Administrators
I think that these kids who were suspended knew what they were doing better than the school officials. They were administering inhalers, not injecting epinephrine. I think a sit down conference with the students involved,their parents, the medical staff at the school and the school administration to review the situation is what should have occurred. I do not advocate sharing medications at all; I am a pharmacist and am well aware of the problems with that. However, before we knew my daughter...
I am really upset about these standards for pollution. I just read an article today called " EPA admits new emissions plan could lead to 1,400 premature deaths a year AUG 21, 2018 6:12 PM EDT U.S. BY JASON SILVERSTEIN / CBS NEWS : "A 289-page EPA report released Tuesday provides details on the impact of the Trump administration's Affordable Clean Energy rule, which would reverse Obama-era cuts to power plant carbon pollution. The EPA acknowledges that the proposed plan is expected to...
I think it is ridiculous and insolent that our rescue inhalers were changed from cold-blast to HFAs over a decade ago to "prevent CFCs" from entering the atmosphere. Now, our rescue inhalers are being potentially attacked again, while the most obvious and gargantuan polluters, the military and the agricultural and oil industries, are allowed to continue their practices on a global scale. The diminutive puffs from inhalers, most of which end up inside of our lungs, represent but a tiny...
Good advice, CConatser! As my doc says, "Stick with the plan, stick with the plan, Stick. With. The. Plan." Why not hop over onto the Asthma Support Forum and share how you put those tips in action?
#Asthma and Allergies has changed my Life as an Adult. # Allergic Asthma allergic to grasses, year around trees, smoke, dust, strong odors feathers etc. causing inflammation of the throat and No oxygen. PLAN OF ACTION 1) emergency medicine with me at all times rescue inhaler Epipen, take medicine regular, see your doctor, use the air conditioner in autos and home, Hepa filter for house and portable home hepa filter, use the breathing treatments if needed, Wear mask if needed, take flu shot...
Patients were heard! The Graham-Cassidy bill is defeated. Pre-existing conditions, lifetime caps and other protections for patients are protected. Thank you to all of our advocates for sharing your stories and taking action. We hope the next step to improving our health care system puts patients’ needs front and center and that our leadership listens and fixes the items that are still barriers to care.
I am working in my state to get a bill introduced on behalf of those of us with life-threatening asthma, allergies and anaphylaxis in regards to this ubiquitous problem of fake service pets, "emotional support" dogs and just general entitlement of pet owners bringing pets into nearly every public building and store. Those of us with dander-sensitive disabilities have been suffering in silence, are being pushed out of our communities and have been ignored, treated rudely and unheard while the...
Definitely interested! There is an enormous amount of misinformation being disseminated about animal dander allergies, and appropriate treatment for asthma and allergies. There is a lot of work that can and should be done to help people understand the facts and the fair treatment of persons affected by these conditions.
The bill in my state passed in the House Committee. If it is voted to pass in the House, it will move to the Senate. It is a long process, but you have to begin by contacting your local House of Representatives rep for your area. Explain to him or her why a bill in your state is needed and ask him or her to look at examples of other states who are tightening up on the misrepresentation of pets as "service animals".
Unfortunately, the American Civil Liberties Union will not intervene in this matter with public transportation. The number you provided is a great course of action as is local state action.
I totally agree with you. The problem is becoming out of control. I have tried reaching out to both the federal and state government to have action taken to revise ADA or put laws into place protecting those with animal allergies. I'm told that the issues aren't "on their agendas". I've been told that I need to make a groundswell to get the government to listen. Any ideas would be welcome. The Department of Justice wasn't very helpful, telling me to take up my issues with my state...
My state passed a bill making it a misdemeanor to misrepresent a pet as a service animal. Unfortunately, the law is nearly impossible to enforce since there are so many limitations on what can be asked to prove the animal is a service animal. Most businesses don't know the laws so they don't bother to ask. Many people continue to lie if they are asked because they know they don't have to provide any proof. I have requested to my State representatives that the ADA be strengthened so that...
I agree that there needs to be more emphasis on animal allergies. I have asked the president of the AAFA, Kenny Mendez, for more aid in battling the onslaught of animals in public places. I have been told by the AAFA that they have limited resources, and food allergies have taken precedence. I am concerned now that service dogs are being trained to detect food allergens, basically pitting one allergy group against another. If others on this board speak directly to the president of the AAFA...
I spoke with a representative at AAFA in December 2018. Although she said that AAFA has brought the perspectives of people with dander-sensitive disabilities to the Department of Transportation (DOT) (because the airline industry doesn't have to honor our ADA rights), AAFA does not, from what I can locate, seem to be doing any serious, aggressive public campaigns on our behalf. You are correct that AAFA seems to be primarily focused on food allergies; they also hide behind arbitrary "air...
Thanks, Shea! I'm so glad you shared your comments with the EPA! I hope other people will make their opinions known as well. Folks here can also sign up to be an AAFA Advocate by joining AAFA's Action Network if they haven't already.
Thanks for this info. Are there any recommended action items if we'd like to get involved? Recommendations for calling/writing our Congressional Representatives, for example.
Finally a serious legislative action on this problem. We all know air quality in schools is horrible and this is now becoming an even bigger issue with Covid-19. There should be good air purifiers in every school.
Hello Godmyfour. Welcome to these community discussions where very difficult questions can be asked and where smart and compassionate people share their best answers. My own children are past school but I can imagine how hard it is for you to send yours to school with so much uncertainty. I guess for me the first thing to know is what IS the COVID plan at my school? Is it the best available? What are school staff doing at your children's school? Are you satisfied you know how to play your...
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