Research can bring new asthma treatments, insight and medicine. It can help improve quality of life for those with asthma. So wouldn’t it be great if people with asthma play a greater role in that research?
The Asthma and Allergy Foundation of America (AAFA) believes your voice is a valuable part of asthma research. And we want to empower people with asthma, caregivers and health care providers to take an active role in research.
Promoting Asthma Patient Engagement in Research (PAPER) is a new research program from AAFA and the Patient-Centered Outcomes Research Institute (PCORI). The goal of the program is to increase awareness of asthma and research and to increase patient participation in research.
We hope you’ll be a part of our initiative to promote patient-centered asthma research. You can help shape research and treatments that can impact the lives of millions of Americans with asthma.
The PAPER project is a collection of 11 videos to help you understand asthma and asthma research. Short topics include:
- Asthma basics
- Asthma symptoms
- Different levels of asthma
- Warning signs of an asthma attack
- Asthma triggers
- Asthma treatment
- Why we need asthma research
- Finding accurate research info
- Outcome measures
- Clinical research
- Clinical trials
You can take part in this research study by watching the video series. Then take a very short survey after each one to give us your feedback.
If you’d prefer to watch the entire program and take only one survey, we have a full-length video available as well:
Be a part of patient-centered research. There are several ways you can get involved in asthma and allergy research. Join our online communities, fill out an interest survey, find clinical trials and more.
This project is funded by the Patient-Centered Outcomes Research Institute (PCORI), contract #2207-AAFA.