AAFA Brings Perspective of Asthma, Allergy Patients to FDA
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Advocating for Patients
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Blog Post CommentI was just wondering if anyone has any knowledge or experience with Dupixent and Dyshidrotic Eczema? I have had it for almost 2 years now. I have tried everything I know to do, as well as Rx creams from my Dr., and nothing helps...not even a little. The skin on my hands (back, front, sides, all fingers- sides, top, bottom) is so thick and itches so bad all the time. The only way I can relieve the itching is by popping the blisters. I'm about to go insane. I don't know what to do. The subject...
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Blog Post CommentWelcome One Woman. I don't know that it has been approved for dyshidrotic eczema, but it's worth talking to the doctor. Have you figured out any triggers that make it worse?
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Blog Post Comment@OneWoman What did your doctor have to say about Dupixent?
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Blog Post Comment@Jen would you know I had an appt with her last week, and I completely spaced this med out. I did talk to her about my eczema, and she did prescribe me a steroid cream (again), but, I forgot to ask about Dupixent. Rats! Not sure when I'll be going in to see her again, either...
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Blog Post CommentDo you feel like the steroid cream is helping?
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Blog Post CommentI contacted my insurance company, Tufts, very happy that finally there is a generic Advair cost includes a $400 deductible per year then each discus is about $150. Not surprisingly, they told me that the generic isn't available on my plan. Ya. And if I wanted to, I could ask for an exception so that it's avaiable on my plan. Then, if it's approved it's TIER FIVE. The brand name Advair is tier four. So Tufts would charge me even more for the generic, IF they approved it for my plan. I've...
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Blog Post CommentSadaya, thanks for letting us know this information. You were smart to check with your insurance company and see if and how they would cover the generic version. Are you eligible for any of the programs on AAFA's patient assistance page ?
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Blog Post CommentAlso, could you check with your doctor and let your doctor know that, due to cost, you are not able to take your medications as directed? Your doctor may be able to help you figure out alternative medications. AAFA has a great blog post series on complementary medicine. The first blog post in the series is called: AAFA Explains: What Is the Difference Between Alternative and Complementary Medicine?
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Blog Post Comment❤️Wonderful surprise, scientist finally created a cost efficient. Generic version of my, medicine. Since Advair arrived on the, shelves my doctor has prescribed it. Since girlhood, I had to take several inhalers, pulmonary machine plus allergy medicines. So grateful about this update!
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Blog Post Comment❤️Mylan has released more information on their new FDA-approved generic version of ADVAIR DISKUS®, the Wixela™ Inhub™. Read the press release for more details.
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Blog Post Comment❤️Thank you, I am taking this. On Fri, Mar 6, 2020, 11:19 AM Asthma and Allergy Foundation of America < support@aafa.org> wrote:
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Blog Post Comment❤️I have been using Montelukast for over 2 years. I have never experienced any side effects. Thank you for posting this important information.
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Blog Post Comment❤️Thank you, I took Singulair for over a year in which it seemed to work great for allergies and then started having a worsening if symptoms, and developed churg-strauss syndrome. I always warn people about that med-disease connection as it is being correlated although causation has not bern proven. I have heard from others about these neuropsychiatric events. I wouldnt let my child take this med or recommend it to anyone I know due to my personal history and from these new warnings.
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Blog Post Comment❤️👍I'm using Singulair since last December with no side-effects. I used in the past as well. Thank you, also. Iris1971
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Blog Post Comment❤️👍Hi Shea, how did you go about getting CSS diagnosis? I'm wondering if that is now my problem. I have all of the possible symptoms and have taken Montelukast on and off for 7 years. Thank you
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Blog Post CommentKMC, My CSS was diagnosed after a medical crisis-- It was evening and I was struggling to breathe (not long after my ex dropped a bunch of my stuff that was covered in cat and dog dander off to the room I was staying in at my parents house) and I had moved out of his house because of my severe allergies (which seemed controlled with Singualair at first that is why I moved in there but after a year I had asthma symptoms and phlegm and kept needing to go to the ER for breathing treatments and...
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Blog Post CommentInteresting
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Blog Post CommentIf you are currently on Xolair or considering it, what are your thoughts about self injections? Excited that this will make things more convenient? Apprehensive about doing the shots at home instead of a clinic? Join the discussion !
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Blog Post Comment☝️I've been on Xolair injections for 8 months now, and we're doubling my dose since my IgE levels are still very high. Even though the FDA has approved injecting at home, my physician's office is still apprehensive about allowing me to inject at home. I have Epi pens and I'm ready to make the switch. It will save me an hour round trip, and $65 per injection. Is it typical for doctor's offices to be nervous about switching?
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Blog Post Comment👍✅Will this be covered by insurance?
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Blog Post CommentI too, am wondering if this will be a covered expense?
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Blog Post Comment@Tia and @AllergyKid2006 -- we'll look into it to see what we can find.