Tagged With "survey"

Blog Post

AAFA Wants to Hear from You About Asthma Concerns

AAFA Community Services ·
Your answers will help us gain a better understanding of asthma research and how it applies to your daily life. Your answers will also help us create a training program for people with asthma.
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Re: Have You Used Oral Steroids For Asthma?

K8sMom2002 ·
Hugs, Debbie ... those are some good points about people with severe asthma. I know many of our members have had to be on much higher doses for long periods of time. It is a hard struggle.
Blog Post

Have You Used Oral Steroids For Asthma?

AAFA Community Services ·
Oral corticosteroids (steroids) are used to treat inflammation and suppress the immune system. Sometimes people take oral corticosteroids to treat asthma. What do you know about this treatment? We want to hear about your experiences with oral corticosteroids – like prednisone – for asthma. If you are an adult with asthma, please take our quick survey : TAKE THE SURVEY NOW The survey closes on June 30, 2018. We will use the information gathered from this survey to advocate on behalf of...
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Re: Have You Used Oral Steroids For Asthma?

Debbie Alves ·
Corticosteroids have saved my life numerous times, but the cost - that’s been much higher than I ever imagined. It was learning how cavalierly some physicians dispense them, without ever properly educating patients/families about side effects - even at times lying about the severity of them - that shocked me the most, and made me determined to do what I can to educate everyone. And to see new and effective treatment protocols and drugs finally made available. Given the number of people with...
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Re: Have You Used Oral Steroids For Asthma?

Debbie Alves ·
I believe this is a critical, and often overlooked, aspect of treatment and applaud your efforts. However, I think there’s a major flaw in your survey - it asks only about short courses of oral corticosteroids, and not higher dosages. For asthma patients like me, with severe, hard-to-impossible to control asthma, short courses haven’t been effective in 25 years. In addition, I now have some of the worst possible long-term side effects of steroid use because of having been prescribed an...
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Re: Have You Used Oral Steroids For Asthma?

Marie E Natzke ·
When I had my last asthma attack after the breathing treatment I was also given 60 mg of prednisone in the ER and was sent home with a script for 40 mg a day for 6 days. 2 weeks later I was given another round of 40 mg a day for 5 days.
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Re: Have You Used Oral Steroids For Asthma?

Linda Gid ·
Debbie, have you started on Fasenra? I have eased symptons on Prednisone, actualy the best when on IV steroids,Solumedrol. Unfortunately both the side effects and the fact that we can't live on these causes me to struggle. I have been on many (nearly all I think) types of new things that come out over the years. My pulmonary Dr is my primary. I would say I am not controlled at this point as I may have a few good weeks, then something triggers it and I am in terrible shape for months at min...
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Re: Have You Used Oral Steroids For Asthma?

Debbie Alves ·
Hi, Linda- I’ve had my first Fasenra injection in June and am hopeful, even more so since I’ve now also been diagnosed with eosinophilic emphysema (mild/moderate, so far, but showed up fairly quickly on my latest CT - the Fasenra may stop the eos from causing further damage). I assume you have eosinophilia and your doctor’s determined that is your primary cause for your asthma? I have Hyper Eosinophilic Syndrome (atypical) and the eosinophilic asthma is relatively recent for me. I have such...
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