My spouse is dealing with CIU, with hives on a daily basis. Her allergist landed on CIU and I thought he was just giving up on trying to find the cause, but a ton of independent research has shown that CIU is apparently legit. If anyone with CIU reads this, can you please share any tips on helping with the daily hives? My wife is curious how others with CIU are coping with regards to their job, especially with the hives causing fatigue and frustration, difficult time concentrating, etc.

Hi NN and welcome to AAFA! I am very sorry to hear that your wife deals with CIU! My oldest daughter also battles CIU. She takes a daily antihistamine to keep it under control. In the beginning, she had to take steroids to help get it under control.

Hi @NN , there are some videos of CIU patient stories available at this link: http://www.ciuandyou.com/videolibrary Hope this helps!

@NN After I got diagnosed I had to take prednisone (a type of steroid) and then they put me on a quadruple dosage of Zyrtec and then some Montelukast. This went on for a couple of years I slowly cut back on the medication over a months span and it's been 2 weeks since I've been hive free. I can't explain it, the doctors can't explain it but hopefully others can recover too. As for coping with it the medication helped but it was still a frustration just keep strong and never give up.

Welcome @JSP and thank you for sharing your experience. This looks like a great topic for the Skin Conditions Support forum or a reply to a discussion there. Looking forward to continuing the conversation with you!