I believe this is a critical, and often overlooked, aspect of treatment and applaud your efforts. However, I think there’s a major flaw in your survey - it asks only about short courses of oral corticosteroids, and not higher dosages. For asthma patients like me, with severe, hard-to-impossible to control asthma, short courses haven’t been effective in 25 years. In addition, I now have some of the worst possible long-term side effects of steroid use because of having been prescribed an...
Hugs, Debbie ... those are some good points about people with severe asthma. I know many of our members have had to be on much higher doses for long periods of time. It is a hard struggle.
Corticosteroids have saved my life numerous times, but the cost - that’s been much higher than I ever imagined. It was learning how cavalierly some physicians dispense them, without ever properly educating patients/families about side effects - even at times lying about the severity of them - that shocked me the most, and made me determined to do what I can to educate everyone. And to see new and effective treatment protocols and drugs finally made available. Given the number of people with...
When I had my last asthma attack after the breathing treatment I was also given 60 mg of prednisone in the ER and was sent home with a script for 40 mg a day for 6 days. 2 weeks later I was given another round of 40 mg a day for 5 days.
Debbie, have you started on Fasenra? I have eased symptons on Prednisone, actualy the best when on IV steroids,Solumedrol. Unfortunately both the side effects and the fact that we can't live on these causes me to struggle. I have been on many (nearly all I think) types of new things that come out over the years. My pulmonary Dr is my primary. I would say I am not controlled at this point as I may have a few good weeks, then something triggers it and I am in terrible shape for months at min...
Hi, Linda- I’ve had my first Fasenra injection in June and am hopeful, even more so since I’ve now also been diagnosed with eosinophilic emphysema (mild/moderate, so far, but showed up fairly quickly on my latest CT - the Fasenra may stop the eos from causing further damage). I assume you have eosinophilia and your doctor’s determined that is your primary cause for your asthma? I have Hyper Eosinophilic Syndrome (atypical) and the eosinophilic asthma is relatively recent for me. I have such...
I always rinse after using my inhaler, but my mouth & throat are dry 24 hrs. a day regardless. I drink more than double the amount of water I'm supposed to just to try to make my mouth & throat not feel so dry. My voice is always hoarse.
I have always brushed my teeth after doing my inhaler. It’s worked great since 1986. But now with a new inhaler, Qvar, I have constant thrush. I’ve tried rinsing them brushing. Also doing mouthwash after. I’ve done two rounds of thrush medicine. Just comes back. I thought it might be the Rybelsus I take but I’m not sure. I had some Flovent I didn’t take when I had to switch and started using that and my tongue seems better. This is not fun!
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