AAFA Urges Inclusion of Patient Voice in Analysis of Costly New Asthma Drugs
AAFA Community Services
Advocating for Patients
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File CommentAwesome! Both of my kids played wind instruments (trumpet and bass clarinet). It seemed to help with their asthma. Is he in a marching band? My kids were and would have issues with evening shows being outside all day.
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File CommentThat's great! Thanks for sharing! There is currently a discussion about What do you say when you tell them you have asthma or allergies? on the forums. What ideas would you share with other members?
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Blog Post Comment❤️Thanks for this info. Are there any recommended action items if we'd like to get involved? Recommendations for calling/writing our Congressional Representatives, for example.
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Blog Post CommentAmber - we are working behind the scenes and will let everyone know about actions to take once things are finalized. Stay tuned!
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Blog Post Comment❤️If you receive health insurance through your job, be sure to tell your employer now how important affordable, non-discriminatory health care is to you and your family! Many employers are shopping around for plans now before open enrollment begins in late fall.
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Blog Post Comment@BenR that's interesting what your allergist said about "gateway allergens". Oral Allergy Syndrome (OAS) symptoms can be worse with high pollen counts, that might've been why you reacted to the tomato sauce like you mentioned. @Sally Raynard welcome to the community! It sounds like a second opinion and allergy testing may be beneficial for you. Both Chronic Idiopathic Urticaria (CIU), also known as Chronic Spontaneous Urticaria (CSU), and OAS can be confusing, especially with limited...
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Blog Post Comment❤️I have been dealing with chronic idiopathic urticaria for 2 years. I don’t typically see hives, just itching all over randomly. I get itchy mouth, tongue and throat as well from time to time. I have thought it was CIU. I have reacted to foods at times - walnuts, eggplant, bananas, avocado… but mostly I really can’t pinpoint my trigger. Maybe it’s both CIU and OAS? I know from allergy testing 20 + years ago that I am allergic to most environmental things- especially dust, mold, pollen and...
