Jade just started her first round of Xolair Injections this past week. She's SO brave! But...I have to admit...It was a bittersweet moment; watching her sit there, calm, asking the nurse to count slowly for her, watching the needle, as she was given both injections. Outside of respectfully saying that it "kind of hurt, a lot", she didn't complain, or cry, or move, or refuse, or scream...she just sat still and watched! As a mom, this was a like a dream come true...at first. [{Sidebar} At this...
@JadesJourney That is great that Jade is so brave during those shots. We have other members who have been on xolair as well and have discussed their experiences on our support forums.
I totally get what you're saying here, @JadesJourney ... fingers crossed that these shots will give her some control over her asthma that has been lacking! WTG on you helping guide her so that she CAN ask those "big girl" questions about the medications she's on. Hang tight, Mama!
All good info! If I might make another suggestion, as a former staffer for the U.S. House of Representatives: once you apply for benefits, it might be good to contact the district office of the Member of the U.S. House of Representatives that represents you ... usually each Member of Congress has constituent services staff members in offices in your congressional district who can help facilitate and follow up on your claim. If you don't know who represents you, use this Find Your...
That is so ... Angering... That hypoallergenic can be used as it is! It is like a blatant lie basically. I am so glad that Certified Allergy and Asthma friendly IS actually regulated and based on science-- definitely will be my go-to mark when I am shopping from now on.
A note for those with pets, if you are forced to evacuate: Take them with you - you may not have a chance to get back Take their rabies certificate and other medical records, microchip records Have a picture in case you get separated Have an extra leash and collar Pet-friendly shelters may not have (enough) cages, so bring one if you can
Hi all - Thanks for the compliments. I have not had to evacuate, thank goodness! I have a friend in Florida who had to evacuate recently. As soon as she knew a potential evacuation was coming found a hotel in a safe area that would accept her animals and always has emergency kits packed for her, her mom and her animals. I find that more and more emergency shelters are accepting pets, at least in the Northeast. Many states have disaster response teams specifically devoted to animals who...
Hi im susana torrechilla from phillipines im here in this community because im always trigger of asthma I already hospitalize 2x in icu about my asthma.I need help some medication about my asthma very long time I know this site will help me about my problem.im not often see the doctore about the financial problem I hope they have a doctor her can help me to diagnose my asthma.I hope one day answer my prayer.thank you! Need medication for begging and for help about my asthma.thank u so much
Hi, Susana! That sounds super frustrating! You may be eligible for help through pharmaceutical assistance programs . Have you checked AAFA's list of resources there?
Wow- this came as quite a surprise that the old inhaler is no longer available. The email and letter I received in the mail introducing the inhaler said NOTHING about discontinuing the old inhaler. Only through this post did I learn this. Extremely upsetting business practice on behalf of Teva. Does anyone have experience with this inhaler? My daughter is only 3 years old and we use a spacer- since this can't be used with a spacer just wondering how well it works for the little ones. Any...
That would be a great question to ask your doc -- but I understand why you wouldn't want to have an appointment just for this question. Why not put a call into the doctor's office and talk with the nurse? Or email your doctor through your portal? Another possibility: could you reach out to your pharmacist? Or if you guys use a respiratory therapist, to them? My pediatrician talked to us about going to a dry powder inhaler that didn't require a spacer because so often parents and kids don't...
My Qvar prescription is setup for auto-refill at Walgreens. A couple of days ago it was supposed to be refilled and the status changed to out of stock and backorder. A few days later it was filled and when I went in to pick it up, the pharmacist said something like the manufacturer changed. When I got home I discovered my prescription was changed to the new Qvar RediHaler. I'm looking forward to trying it out but I won't know for another 20 days until I use up my old Qvar.
Very informative article.thank you for keeping us updated.my child's dr actually asked me to do that when my son had some cold symptoms as a prevention for his asthma,and it made sense to me to do it,but now I know better thx.as it is I'm very concerned abt my child's growth.
Chery, welcome! Feel free to start a new topic or join in on a conversation on our support community . It's tough when you're worried about your kiddo's growth.
I have noticed the doctors depend more on the meds than on their judgements...when u question them about the meds being prescribed they make u feel like its the right thing to do but when I do my own research it' a totally different story.
Interesting. I wonder if adults receive any benefits from pretreating with inhaled steroids as far as preventing flare-ups-- or if they are like the children from this study and do not benefit? I sure with there were more non-steroid options that were efective and safe and less side effects. I know I am working hard with avoidance strategies and keeping indoor air quality in my home good.
Teva Pharmaceuticals and other inhaler manufacturers need to make an inhaler product that does NOT have these serious side effects. No Glaucoma, Cataracts, Adrenal Insufficiency, etc. wanted by me (SEE WARNINGS listed above). Jenny H. - Please Note: Product described above says 4 years of age and older.
Ann - it's very frustrating when meds have potential long term side effects. It's are really hard position for everyone with asthma to have to balance the trade off of meds to manage their asthma and potential side effects.
Could Vitamin D blood levels stem from absorption issues? Or a lack of sun on our skin, aka. outdoor time? Simply adding an isolate to treat symptoms gets us no closer to a remedy of the cause. Dig deep, many times it is less what we add to our bodies and more of what we subtract that brings our systems into homeostasis. #subtractionarymedicine
I use the QVAR respihaler too and for me, not having propellant in it made a huge difference. My lungs have never liked the prolellant but I've always managed because the steroid component took care of the issues I had but the new respihaler is MUCH better for me.
Very informative! I've just read the related article about humidity recently https://www.medicalnewstoday.com/articles/325474.php . We don't live in a wet climate, and my son suffered because of dry air. We bought an ultrasonic humidifier to help him breathe easier, but at that time we hadn't known that the humidity level should be 40-45%. So the humidity in our room was around 55%, and my son’s health has not only not improved, but has also worsened. Thanks to our Dr, he explained to us how...
While Georgia didn't make the honor roll list, I was pleased to see that many of the items on the check list were things that my DD's school already does.
Lynn, thank you for coming out of the closet and educating others on the struggles we face. You are a warrior and inspiration. My workplace environment has come a long way since I spoke out. It was hard to do at first but now everyone knows. People come up to me to warn me about the elevator or stairway or bathroom when there are perfumes used (policy violation). One thing you didn't mention is the fear we live with....fear of another bad attack or fear of being out with a flare and not...
When you block a person, they can no longer invite you to a private message or post to your profile wall. Replies and comments they make will be collapsed/hidden by default. Finally, you'll never receive email notifications about content they create or likes they designate for your content.
Note: if you proceed, you will no longer be following .