Skip to main content

Advocating for Patients

After Asthma Tragedy, Laura’s Law Requires Better Access to Emergency Rooms in Massachusetts

Massachusetts hospitals are now required to have emergency department entrances that are easy to access. They will also have to be properly monitored by security and clearly marked. This is a result of “ Laura’s Law ” that was signed by Governor Charlie Baker on Jan. 15, 2021. The Boston Globe story, “Losing Laura,” inspired the law. The story is about the tragic death of Laura Beth Levis. Laura was a 34-year-old woman who died of an asthma attack just steps from an emergency room door in...

AAFA's Experts Help FDA and NIH Address Safety of Asthma Medications During Pregnancy and Lactation

Asthma is one of the most common medical problems that occurs during pregnancy. It can be potentially serious. Asthma can get worse during pregnancy and lead to problems like high blood pressure, early labor and delivery, and low birth weight. Asthma can even cause death. The Centers for Disease Control and Prevention (CDC) tracks pregnancy-related deaths (from any cause) in the United States in a system called the Pregnancy Mortality Surveillance System (PMSS) . The rate of maternal deaths...

Improving Social Determinants of Health Can Reduce Asthma Disparities

Update as of March 2, 2021: Advocacy Action Alert! Ask your representatives to support t he Improving Social Determinants of Health Act of 2021 . Use our simple tool at the bottom of this blog post to email a letter or share your message on Twitter. Social and economic factors play a big role in health disparities in the United States. A health disparity is when a health condition, like asthma, affects one group of people differently than another group. In the U.S., Black, Hispanic, and...

AAFA Supports Bills Aimed at Saving and Improving the Lives of Black Mothers

Update as of March 2, 2021: Advocacy Action Alert! Ask your representatives to support the Black Maternal Health Momnibus Act. Use our simple tool at the bottom of this blog post to email a letter or share your message on Twitter. On Feb. 8, 2021, Rep. Lauren Underwood (D-IL), Rep. Alma Adams (D-NC), Senator Cory Booker (D-NJ), and other leaders of Congress introduced the Black Maternal Health Momnibus Act . The act is made up of 12 bills introduced by Black Maternal Health Caucus members.

AAFA Partners With National Minority Quality Forum on Critical Research to Help Reduce Asthma Disparities

The Asthma and Allergy Foundation of America (AAFA) is working with the National Minority Quality Forum (NMQF) on important asthma research. The goal of this partnership is to provide helpful data to help reduce asthma disparities among minority groups. NMQF is a health care research and education nonprofit. Their mission is to reduce patient risk by assuring the best possible care for all. They combine data and knowledge to help end health disparities. This data helps health care providers,...

Health Care Disparities in the Asthma and Allergy Community (Videos and Resources)

The New England Chapter of the Asthma and Allergy Foundation of America (AAFA) recently hosted a webinar to examine health equity among Black Americans. Four experts joined the online discussion, titled “Speaker Series: Health Care Disparities in the Asthma and Allergy Community.” The panel looked at how these factors affect health equity: Social determinants of health Structural racism Implicit bias Asthma Disparities in America The burden of asthma in the U.S. falls disproportionately on...

AAFA Advocacy Recap and What’s Next in 2021

The year 2020 was unlike any other – filled with loss and uncertainty for so many. With the nation still rocked by a global pandemic, this year is proving to be no different. Despite many obstacles, the Asthma and Allergy Foundation of America (AAFA) remains committed to advocating for the asthma and allergy community. Last year, we led and took part in more than 20 different coalitions working together to move bills through Congress and state governments. Four of the bills AAFA championed...

Town Hall: Black Americans and the COVID-19 Vaccine

The COVID-19 pandemic has hit Black Americans hard. According to The COVID Racial Data Tracker , the COVID death rate of Black Americans is 1.5 times that of white people. We now have two COVID-19 vaccines , with more on the way. While the vaccines offer hope overall, they raise other concerns. Many Black Americans may not be able to get it. Or they may choose to not to get it. The National Minority Quality Forum (NMQF) held a virtual town hall on Jan. 25, 2021, to examine barriers that may...

Asthma and Allergies in 2020: Hope and Support During Uncertainty

Like many organizations, the Asthma and Allergy Foundation of America (AAFA) has been hit hard by the COVID-19 pandemic. The asthma and allergy community has been heavily impacted by several events of 2020: The public health emergency and economic recession caused by the COVID-19 pandemic Loss of health care or delayed access to medications due to the pandemic Record-breaking wildfires and health impacts related to natural disasters and air pollution Widespread upheaval over racial...

A Kind Heart: One Mom Shares Her Daughter’s Legacy to Help Prevent Asthma Deaths

It shouldn’t have happened. Not to Urainia Bendter. Not to her ex-husband. Not to her partner Lamont Sykes. Not to her grieving son. Not to her newborn daughter. And not to Adaora Elikwu. At only 12 years old, Adaora was destined for greatness. She knew what she wanted − to go an Ivy League school and be a lawyer one day. She was well on her way, having been accepted into the DREAM Specialized High School Institute to earn a seat at a specialized high school in New York City. Talkative and...

Congress Passes School-Based Allergies and Asthma Management Program Act

Update: It's official! On Jan. 5, 2021, the president signed the School-Based Allergies and Asthma Management Program Act into law. Thank you to our community. Your efforts helped to get this bill signed into law, which will help thousands of students with asthma and allergies and their families nationwide. AAFA Celebrates Major Advocacy Win! Congress Passes School-Based Allergies and Asthma Management Program Act, H.R. 2468 Law gives greater protections and resources to students with asthma...

Asthma Diagnosis, Management, and Treatment in the U.S. Is Changing – What the New Guidelines Say

On Dec. 3, 2020, the National Institutes of Health (NIH) announced updates to the clinical guidelines used to diagnose and manage asthma. The new guidelines are titled "The 2020 Focused Updates to the Asthma Management Guidelines: A Report from The National Asthma Education and Prevention Program Expert Panel Working Group." The National Heart, Lung, and Blood Institute (NHLBI), part of the NIH, oversaw the National Asthma Education and Prevention Program Coordinating Committee (NAEPPCC) and...

×
×
×
×