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Advocating for Patients

AAFA Partners With National Minority Quality Forum on Critical Research to Help Reduce Asthma Disparities

The Asthma and Allergy Foundation of America (AAFA) is working with the National Minority Quality Forum (NMQF) on important asthma research. The goal of this partnership is to provide helpful data to help reduce asthma disparities among minority groups. NMQF is a health care research and education nonprofit. Their mission is to reduce patient risk by assuring the best possible care for all. They combine data and knowledge to help end health disparities. This data helps health care providers,...

Health Care Disparities in the Asthma and Allergy Community (Videos and Resources)

The New England Chapter of the Asthma and Allergy Foundation of America (AAFA) recently hosted a webinar to examine health equity among Black Americans. Four experts joined the online discussion, titled “Speaker Series: Health Care Disparities in the Asthma and Allergy Community.” The panel looked at how these factors affect health equity: Social determinants of health Structural racism Implicit bias Asthma Disparities in America The burden of asthma in the U.S. falls disproportionately on...

AAFA Advocacy Recap and What’s Next in 2021

The year 2020 was unlike any other – filled with loss and uncertainty for so many. With the nation still rocked by a global pandemic, this year is proving to be no different. Despite many obstacles, the Asthma and Allergy Foundation of America (AAFA) remains committed to advocating for the asthma and allergy community. Last year, we led and took part in more than 20 different coalitions working together to move bills through Congress and state governments. Four of the bills AAFA championed...

Town Hall: Black Americans and the COVID-19 Vaccine

The COVID-19 pandemic has hit Black Americans hard. According to The COVID Racial Data Tracker , the COVID death rate of Black Americans is 1.5 times that of white people. We now have two COVID-19 vaccines , with more on the way. While the vaccines offer hope overall, they raise other concerns. Many Black Americans may not be able to get it. Or they may choose to not to get it. The National Minority Quality Forum (NMQF) held a virtual town hall on Jan. 25, 2021, to examine barriers that may...

Asthma and Allergies in 2020: Hope and Support During Uncertainty

Like many organizations, the Asthma and Allergy Foundation of America (AAFA) has been hit hard by the COVID-19 pandemic. The asthma and allergy community has been heavily impacted by several events of 2020: The public health emergency and economic recession caused by the COVID-19 pandemic Loss of health care or delayed access to medications due to the pandemic Record-breaking wildfires and health impacts related to natural disasters and air pollution Widespread upheaval over racial...

A Kind Heart: One Mom Shares Her Daughter’s Legacy to Help Prevent Asthma Deaths

It shouldn’t have happened. Not to Urainia Bendter. Not to her ex-husband. Not to her partner Lamont Sykes. Not to her grieving son. Not to her newborn daughter. And not to Adaora Elikwu. At only 12 years old, Adaora was destined for greatness. She knew what she wanted − to go an Ivy League school and be a lawyer one day. She was well on her way, having been accepted into the DREAM Specialized High School Institute to earn a seat at a specialized high school in New York City. Talkative and...

Congress Passes School-Based Allergies and Asthma Management Program Act

Update: It's official! On Jan. 5, 2021, the president signed the School-Based Allergies and Asthma Management Program Act into law. Thank you to our community. Your efforts helped to get this bill signed into law, which will help thousands of students with asthma and allergies and their families nationwide. AAFA Celebrates Major Advocacy Win! Congress Passes School-Based Allergies and Asthma Management Program Act, H.R. 2468 Law gives greater protections and resources to students with asthma...

Asthma Diagnosis, Management, and Treatment in the U.S. Is Changing – What the New Guidelines Say

On Dec. 3, 2020, the National Institutes of Health (NIH) announced updates to the clinical guidelines used to diagnose and manage asthma. The new guidelines are titled "The 2020 Focused Updates to the Asthma Management Guidelines: A Report from The National Asthma Education and Prevention Program Expert Panel Working Group." The National Heart, Lung, and Blood Institute (NHLBI), part of the NIH, oversaw the National Asthma Education and Prevention Program Coordinating Committee (NAEPPCC) and...

It Never Should Have Happened: Recognizing Racial Bias in Asthma Could Have Saved Valerie’s Husband

On Sept. 16, 2020, the Asthma and Allergy Foundation of America (AAFA) released our Asthma Disparities in America report. This report looks at how asthma affects Black, Hispanic and American Indian/Alaska Native groups in the United States. After coming across this report, Valerie Vison reached out to share her story. In the essay below, you’ll hear from Valerie, who lost her husband, Jordan, to asthma on July 22. In a World of “What If” – Could Racial Bias Have Contributed to My 30-Year-Old...

Asthma Impacts on American Indian/Alaska Native People

The Asthma and Allergy Foundation of America report on Asthma Disparities in America looks at the burden of asthma on racial/ethnic groups in the United States. Health disparities are preventable health differences between groups of people. Health disparities are higher burdens of illness or death linked to social, economic, and environmental disadvantages. For example, if one group of people has a higher rate of asthma than another group of people, it is an asthma disparity. This month is...

AAFA and Other Groups Ask New Administration to Protect People With Pre-Existing Conditions

The countdown to Inauguration Day has begun. The Asthma and Allergy Foundation of America (AAFA) has joined 32 patient groups to represent millions of people with pre-existing conditions. We are urging lawmakers to spend their first 100 days in office working to make sure people have access to high-quality, affordable health coverage. “ The 100 Days Agenda: A Patient-First Blueprint ” outlines specific steps the president and other elected officials can take to protect patients. The first...

AAFA Receives CDC Funding Award to Improve Asthma Care and Outcomes for At-Risk Populations Through Comprehensive Community Health Interventions

The Asthma and Allergy Foundation of America (AAFA) is spearheading yet another new venture geared toward improving health outcomes for our nation’s most at-risk groups affected by asthma. These groups include Black, Hispanic and Indigenous Americans, senior adults, expectant mothers, children with asthma, and our nation’s military who have developed asthma while in service.

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