Thank you for sharing your experience. My 10 year old is going to be starting Xolair very soon, we finally got the approval from our insurance. I’m hoping this is just what she needs. She has been hospitalized so many times and is constantly absent from school because of her asthma not to mention all the steroids she’s taken. We’ve tried so many different preventative medications and it just isn’t enough. I hope all goes well and there aren’t any side effects the possibility of that is...
Welcome, SGP8136! I am hoping that your daughter will do well on the Xolair and will see improvements! Please know that you guys aren't alone as you go along ... you'll find plenty of support on AAFA's Asthma Support Community .
My child was diagnosed with Cough-Variant asthma at the age of 2. She has been on steroids since then and she is 9 and she is only at 57 lbs. Right now she takes Advair 250/50 two puffs twice a day, singular and a nasal spray. She has had an allergy test completed and everything came back negative. We have to go back to the allergist in October. With her being negative on all 22 test, how do I go about protecting her. When she has a flare-up, we do her normal meds, treatments twice a day,...
Oh @Lisa H ! I am so sorry! That has to be very frustrating. Has she ever tried being on an antihistamine? for us if we can get our PND (post nasal drip) in control, our asthma can be better managed. Something to talk to the doctor about. Here is some resources: Allergy Symptoms Allergy Treatment Asthma Over View Asthma Triggers Asthma Treatments Also please join us in the Asthma Support forum
Jade just started her first round of Xolair Injections this past week. She's SO brave! But...I have to admit...It was a bittersweet moment; watching her sit there, calm, asking the nurse to count slowly for her, watching the needle, as she was given both injections. Outside of respectfully saying that it "kind of hurt, a lot", she didn't complain, or cry, or move, or refuse, or scream...she just sat still and watched! As a mom, this was a like a dream come true...at first. [{Sidebar} At this...
@JadesJourney That is great that Jade is so brave during those shots. We have other members who have been on xolair as well and have discussed their experiences on our support forums.
I totally get what you're saying here, @JadesJourney ... fingers crossed that these shots will give her some control over her asthma that has been lacking! WTG on you helping guide her so that she CAN ask those "big girl" questions about the medications she's on. Hang tight, Mama!
Very informative article.thank you for keeping us updated.my child's dr actually asked me to do that when my son had some cold symptoms as a prevention for his asthma,and it made sense to me to do it,but now I know better thx.as it is I'm very concerned abt my child's growth.
Chery, welcome! Feel free to start a new topic or join in on a conversation on our support community . It's tough when you're worried about your kiddo's growth.
I have noticed the doctors depend more on the meds than on their judgements...when u question them about the meds being prescribed they make u feel like its the right thing to do but when I do my own research it' a totally different story.
Interesting. I wonder if adults receive any benefits from pretreating with inhaled steroids as far as preventing flare-ups-- or if they are like the children from this study and do not benefit? I sure with there were more non-steroid options that were efective and safe and less side effects. I know I am working hard with avoidance strategies and keeping indoor air quality in my home good.
*I am not a doctor* My biggest concern for children who suffer with allergic asthma is the child might not know how to talk about how their allergies, asthma, are causing them to feel bad, to have problems with their sinuses, nose, throat, upper respiratory tract. My concern for the child with asthma, what is their indoor living environment? What is their bedroom like as that is where child may spend most of their life. Does the child have a Hepa air filter machine working to clean the air?
Welcome to the community Whippetartist! Controlling triggers in the environment is important. Educating families and home assessments can help with this. AAFA teamed up with Rady Children's Hospital in San Diego for a Severe Asthma Program and we are looking at the impact these types of programs can have .
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