I think it is ridiculous and insolent that our rescue inhalers were changed from cold-blast to HFAs over a decade ago to "prevent CFCs" from entering the atmosphere. Now, our rescue inhalers are being potentially attacked again, while the most obvious and gargantuan polluters, the military and the agricultural and oil industries, are allowed to continue their practices on a global scale. The diminutive puffs from inhalers, most of which end up inside of our lungs, represent but a tiny...
Patients were heard! The Graham-Cassidy bill is defeated. Pre-existing conditions, lifetime caps and other protections for patients are protected. Thank you to all of our advocates for sharing your stories and taking action. We hope the next step to improving our health care system puts patients’ needs front and center and that our leadership listens and fixes the items that are still barriers to care.
I am working in my state to get a bill introduced on behalf of those of us with life-threatening asthma, allergies and anaphylaxis in regards to this ubiquitous problem of fake service pets, "emotional support" dogs and just general entitlement of pet owners bringing pets into nearly every public building and store. Those of us with dander-sensitive disabilities have been suffering in silence, are being pushed out of our communities and have been ignored, treated rudely and unheard while the...
Definitely interested! There is an enormous amount of misinformation being disseminated about animal dander allergies, and appropriate treatment for asthma and allergies. There is a lot of work that can and should be done to help people understand the facts and the fair treatment of persons affected by these conditions.
The bill in my state passed in the House Committee. If it is voted to pass in the House, it will move to the Senate. It is a long process, but you have to begin by contacting your local House of Representatives rep for your area. Explain to him or her why a bill in your state is needed and ask him or her to look at examples of other states who are tightening up on the misrepresentation of pets as "service animals".
Unfortunately, the American Civil Liberties Union will not intervene in this matter with public transportation. The number you provided is a great course of action as is local state action.
I totally agree with you. The problem is becoming out of control. I have tried reaching out to both the federal and state government to have action taken to revise ADA or put laws into place protecting those with animal allergies. I'm told that the issues aren't "on their agendas". I've been told that I need to make a groundswell to get the government to listen. Any ideas would be welcome. The Department of Justice wasn't very helpful, telling me to take up my issues with my state...
My state passed a bill making it a misdemeanor to misrepresent a pet as a service animal. Unfortunately, the law is nearly impossible to enforce since there are so many limitations on what can be asked to prove the animal is a service animal. Most businesses don't know the laws so they don't bother to ask. Many people continue to lie if they are asked because they know they don't have to provide any proof. I have requested to my State representatives that the ADA be strengthened so that...
I agree that there needs to be more emphasis on animal allergies. I have asked the president of the AAFA, Kenny Mendez, for more aid in battling the onslaught of animals in public places. I have been told by the AAFA that they have limited resources, and food allergies have taken precedence. I am concerned now that service dogs are being trained to detect food allergens, basically pitting one allergy group against another. If others on this board speak directly to the president of the AAFA...
I spoke with a representative at AAFA in December 2018. Although she said that AAFA has brought the perspectives of people with dander-sensitive disabilities to the Department of Transportation (DOT) (because the airline industry doesn't have to honor our ADA rights), AAFA does not, from what I can locate, seem to be doing any serious, aggressive public campaigns on our behalf. You are correct that AAFA seems to be primarily focused on food allergies; they also hide behind arbitrary "air...
Thanks, Shea! I'm so glad you shared your comments with the EPA! I hope other people will make their opinions known as well. Folks here can also sign up to be an AAFA Advocate by joining AAFA's Action Network if they haven't already.
Thanks for this info. Are there any recommended action items if we'd like to get involved? Recommendations for calling/writing our Congressional Representatives, for example.
Finally a serious legislative action on this problem. We all know air quality in schools is horrible and this is now becoming an even bigger issue with Covid-19. There should be good air purifiers in every school.
@ses1978 Access to your medical records is a right you are guaranteed by law . If your doctor's office is refusing to give you a copy of our records they should be reported (to whom depends on the specific situation and the state you live in). If you'd like to discuss the specifics of this issue, you can call AAFA's Support Center at (800) 727-8462 (or send an email to info@aafa.org ) and we can advise you on a plan of action.
We have updated this blog post to reflect more recent information on the 2019 new coronavirus (COVID-19). Even though coronavirus numbers have risen worldwide, people in the U.S. are still at a greater risk of getting the flu. Keep washing your hands and avoiding people who are sick. And don't forget to follow your Asthma Action Plan if you start feeling ill.
Hi @Fraser - this is a really great question that many people have. All medicines have side effects, and taking additional medication when it is not needed is a decision to be made between you and your doctor. Additionally, being on a preventer medicine may not reduce asthma symptoms if you were to get an infection. My recommendation is to talk to your doctor about a plan to manage your asthma at the first sign of symptoms, and update your asthma action plan accordingly. Is that doable? ~ Lorene
Hi @Karleeta we completely understand your concern and fear. Fever and a dry cough are symptoms of a virus. If your son is not running a fever it very well could just be an asthma flare. I hope he is feeling better? The best thing you can do is to make sure both your children take their asthma medications as directed. Do they have asthma action plans? Keep them at home as much as possible, wipe down surfaces with disinfectant wipes, wash hands often and keep them from touching their faces.
Lorene, Thank you for responding back to me. He is feeling a little better. Thank you for asking. They do have Asthma Action Plans. They are with grandparents for a couple days while we make sure our home is disinfectant really good. They are already on top with the washing of the hands and using hand sanitizer. We have been stressing that with them. I know their school just postponed it for another week. I know they will be staying home and not go no where. That is another reason why they...
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