Thank you for sharing your experience. My 10 year old is going to be starting Xolair very soon, we finally got the approval from our insurance. I’m hoping this is just what she needs. She has been hospitalized so many times and is constantly absent from school because of her asthma not to mention all the steroids she’s taken. We’ve tried so many different preventative medications and it just isn’t enough. I hope all goes well and there aren’t any side effects the possibility of that is...
Welcome, SGP8136! I am hoping that your daughter will do well on the Xolair and will see improvements! Please know that you guys aren't alone as you go along ... you'll find plenty of support on AAFA's Asthma Support Community .
What a great program. I will add this to my Press releases for Text4Help.org. If I can be of any assistance let me know. I will participate in this program as well. Keep up the good work AAFA.org
New here but enjoy all the information,and I thank you all for this.As I become a member for a longer period of time I will feel more comfortable adding my information.I am more COPD Oriented.
That's awesome! What a great way to support AAFA! Starting a Facebook fundraiser is so easy too. For anyone interested, there are lots of ways to support AAFA - http://www.aafa.org/page/fundraise-for-aafa.aspx .
Thank you for sharing! I think you are doing amazing advocating for yourself and making changes in your home and work life, gaining support from your friends, family, and coworkers along the way (even though it can be hard at times). I am so thankful to hear your stories on Daily Roll Call thread and hear how you find accomodations and work through problems because it helps me and makes me feel less alone in this.
What I really find annoying about asthma is it robs me of being able to have a good belly laugh...I starting coughing and lose my breath. So because people don't see me laugh too much they think I'm a crab!!!
@Marie E Natzke , laughter is one of my biggest asthma triggers. It stinks because I consider myself to have a great sense of humor and I'm the type who laughs so hard I have tears streaming down my face. But it comes at a cost, every time.
What I dont like about it is that it made me feel less important to people than their pets and that for many years I also treated myself that way and put myself around animals that made me suffer so badly until I had a heart attack due to allergic eosinophils surrounding my heart and choking it, then I took it seriously but still others dont and I struggle to stay strong and remember what happened to me so that that never happens to me again and its difficult because friends get dogs and I...
My child was diagnosed with Cough-Variant asthma at the age of 2. She has been on steroids since then and she is 9 and she is only at 57 lbs. Right now she takes Advair 250/50 two puffs twice a day, singular and a nasal spray. She has had an allergy test completed and everything came back negative. We have to go back to the allergist in October. With her being negative on all 22 test, how do I go about protecting her. When she has a flare-up, we do her normal meds, treatments twice a day,...
Oh @Lisa H ! I am so sorry! That has to be very frustrating. Has she ever tried being on an antihistamine? for us if we can get our PND (post nasal drip) in control, our asthma can be better managed. Something to talk to the doctor about. Here is some resources: Allergy Symptoms Allergy Treatment Asthma Over View Asthma Triggers Asthma Treatments Also please join us in the Asthma Support forum
What a wonderful story and testimony that with Asthma you can do what your heart desires. You are a champion Megan on so many levels and an inspiration to individuals with or without Asthma. I look forward to your next blog!
Our family suffers from asthma triggered by fragrances and other chemicals. We are so happy you are informing people that wearing fragrance or products/clothing that emit fragrance are deadly for many people with asthma. We cannot go anywhere where we cannot leave if someone were to come in the room with "fragrance" known to be toxic chemicals. Most importantly, our hearts break for children who are trapped in a classsroom all day. Many laundry detergents/fabric softners emit persistent...
I suffer from asthma and eczema both my dad had it but now he doesn't i do i try my best to stay away from grilling and smoke and perfumes and foods that i get allergies from like fish and wheat and oranges and more u should never take these easy u should always be a wear of what u eat and sleep and breathe so take care and i am only 14yrs old but take care
@jjtre I hear you about all of the scents these days. Walking down the cleaning aisle of the grocery store is like an assault on my senses. @5starbabez Welcome to posting. How do you avoid your allergens? Do you carry epinephrine?
I’ve never thought of improving the air quality at my work because I don’t get the right support for anything so I didn’t bother asking. I don’t have food allergies but I have a lot of environmental allergies and I take Flonase, Zyrtec, Fluticasone, Eye drops, and Benadryl at night just to sleep. I’d probably be a great candidate for Xolair! I also have asthma. It’s been interesting to say the least!
What an amazing and inspiring story! I have asthma and environmental allergies and am active-sometimes I have to limit my activities outside during certain months so I don’t go into a flare..happens too often for me but I try to keep my lungs in shape too! I keep trying to push myself.
@RSkalak , hugs on the lack of support from work. It sounds like your environmental allergies are tough to manage! The Asthma and Allergic community forums are a great place to get support from folks who have been there and done that!
That's great you persevere and push yourself while being smart about it @RSkalak ! It sounds like you've figured out what took me way too long to learn-- that exercise with asthma is a balancing act, but absolutely possible if you know how to manage your triggers. Best wishes in your active life!
I have been on Ventolin for 7 years due to smoke inhalation scaring my lungs. I am pron to bronchitis and this is what my doctor has put me on. This year we have been denied 3 times from CVS stating FDA ruling. We have tried proair and proventin and they do not produce the results the doctor wants. I will not pay for something that does not work just because the insurance company says so. I can not afford $50 for one inhaler when I was getting 3 every 4 months for $35. I will go with out and...
Hi donnamarie, Welcome to AAFA's asthma support community. It is very frustrating that your insurance isn't covering the medication that works for you. AAFA has a blog with some tips for what you can do if you can't afford your asthma medicine . I also invite you to join our asthma support forum where you can get ideas and support from other dealing with asthma.
Jade just started her first round of Xolair Injections this past week. She's SO brave! But...I have to admit...It was a bittersweet moment; watching her sit there, calm, asking the nurse to count slowly for her, watching the needle, as she was given both injections. Outside of respectfully saying that it "kind of hurt, a lot", she didn't complain, or cry, or move, or refuse, or scream...she just sat still and watched! As a mom, this was a like a dream come true...at first. [{Sidebar} At this...
@JadesJourney That is great that Jade is so brave during those shots. We have other members who have been on xolair as well and have discussed their experiences on our support forums.
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