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Tagged With "PFDD"

Blog Post

Be Part of a Project to Shape New Eczema Treatments

AAFA Community Services ·
AAFA has joined with four other nonprofit organizations that serve people with eczema to launch “More Than Skin Deep.” This project will inform and shape the development of treatments for eczema. A main part the project is a patient-focused drug development (PFDD) meeting on Sept. 23, 2019, in Washington, D.C.
Blog Post

Be Part of the Future of Food Allergy Treatment (Video)

AAFA Community Services ·
Update for Oct. 4, 2021: Did you miss the live stream of the PFDD meeting on food allergy? You can watch the recording . You can still share your experiences living with and managing food allergy. Send in your comments by Oct. 9, 2021. We will include your comments in the upcoming food allergy “Voice of the Patient Report.” We will send this report to FDA representatives. By sharing your story, you can help influence the future of treatments for food allergies. SUBMIT YOUR COMMENTS The...
Blog Post

What Is It Like to Live With and Manage Asthma in Childhood? Share Your Story With the FDA

AAFA Community Services ·
Update for Oct. 8, 2021: Did you miss the live stream of the PFDD meeting on childhood asthma? We are also still collecting stories about experiences living with and managing food allergy. See below for more information below on how to watch the recording and submit your comments . To bring the voice of patients and caregivers impacted by asthma in childhood to the forefront of drug development and research, the Allergy & Asthma Network, American Lung Association, American Partnership...
Blog Post

Children With Asthma Need Better Treatments

AAFA Community Services ·
Childhood asthma can have a significant impact on nearly every aspect of life. Your personal stories can be a key part of driving the future of research on childhood asthma treatments. Join Ryan, Shreaya, and Regan in making a difference for kids living with asthma. You can help direct research to improve treatment and quality of life. Share your story about managing childhood asthma for yourself or someone you care for by Friday, Nov. 5, 2021! SHARE YOUR STORY As a thank you for...
Comment

Re: Children With Asthma Need Better Treatments

Whippetartist ·
*I am not a doctor* My biggest concern for children who suffer with allergic asthma is the child might not know how to talk about how their allergies, asthma, are causing them to feel bad, to have problems with their sinuses, nose, throat, upper respiratory tract. My concern for the child with asthma, what is their indoor living environment? What is their bedroom like as that is where child may spend most of their life. Does the child have a Hepa air filter machine working to clean the air?
Comment

Re: Children With Asthma Need Better Treatments

Kathy P ·
Welcome to the community Whippetartist! Controlling triggers in the environment is important. Educating families and home assessments can help with this. AAFA teamed up with Rady Children's Hospital in San Diego for a Severe Asthma Program and we are looking at the impact these types of programs can have .
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