I underwent my second Bronchial Thermoplasty on October 4th, 2018. My recovery from BT 2 was a bit longer than the first procedure because my left side is weaker than my right. I was back to work though after 5 days off and back to my everyday life. I just had my third and final procedure done and being day 1 it has been ROUGH. my ribs feel like they're all cracked, I get winded just sitting up in bed but this is all expected and normal. I just keep telling myself it will all pay off in the...
I contacted Amtrak through their website with an electronic message option in October 2018. I received no reply when I inquired about how they are accommodating passengers with dog/cat allergies and allergy induced asthma. It appears that the travel industry as a whole is putting profits before public health and safety. Also, I don't understand why the travel industry is not subject to make accommodations for a breathing disability under the Americans with Disabilities Act. I had an allergic...
I haven't been able to fly since 2011. I contacted the ACLU and they declined to take on the issue of pets being allowed on planes and trains without even the ADA standards in place to protect those of us with dander-sensitive asthma and allergies. It is very unjust how profits are being put before life and death health issues.
My child was diagnosed with Cough-Variant asthma at the age of 2. She has been on steroids since then and she is 9 and she is only at 57 lbs. Right now she takes Advair 250/50 two puffs twice a day, singular and a nasal spray. She has had an allergy test completed and everything came back negative. We have to go back to the allergist in October. With her being negative on all 22 test, how do I go about protecting her. When she has a flare-up, we do her normal meds, treatments twice a day,...
I’ve never thought of improving the air quality at my work because I don’t get the right support for anything so I didn’t bother asking. I don’t have food allergies but I have a lot of environmental allergies and I take Flonase, Zyrtec, Fluticasone, Eye drops, and Benadryl at night just to sleep. I’d probably be a great candidate for Xolair! I also have asthma. It’s been interesting to say the least!
I have noticed the doctors depend more on the meds than on their judgements...when u question them about the meds being prescribed they make u feel like its the right thing to do but when I do my own research it' a totally different story.
I feel like products like the Samsung Cube air purifier are marketed to those of us who are asthmatics because we are desperate to breathe. And so many of us have severe allergies (and allergy induced asthma) that we try to spend money we don't have just to try to breathe - this isn't right - there have to be alternatives that are affordable - our medications alone are incredibly expensive. We spend hundreds, if not thousands covering our mattresses, buying special pillows, special air duct...
These new biologics are expensive-- even with insurance the out of pocket costs make them unaffordable to me. That might change with time. I know there are some programs out there that help people, but in my current situation none help me. I am also curious if people are able to stop them without needing to go back on them or oral steroids, or if they need to continue them indefinitely. I also worry about any new medications long-term risks, like for cancers. Some of that is hard to know...
Its ridiculous that MD do have no protection for our childern. My daugther has asthma bad especially in September this year it was the 1st day. Plus yes our school systems is so not right. They failed my baby 2 two but over turned the last one. Then last year ask if she wants to go in her correct grade in October no this should of been offered before school started. Crazy no implenations or help.
I get allergy shots to help prevent my asthma from triggering . But my allergy/asthma Dr is closed right now . So how do I get my shot On Fri, Mar 20, 2020 at 1:54 PM Asthma and Allergy Foundation of America < support@aafa.org> wrote:
This is a great blog post! Be sure to keep hydrated, especially with the heat running more during cold days and nights! Keep your head propped up during the night, to help keep your airway open. Be sure to contact your doctor right away if things just don't seem right. Cover your face with a scarf if going out into the cold. Yes, this means over your mask. Be sure to wash your hands properly when necessary. Follow your medication schedule as directed by your doctor! Also, don't forget to...
@Ironmom316 You're right that this issue (bringing non-service animals into public places) needs practical solutions. This specific program mentioned above is meant to address allergens in the home. While, not having a dog in your house will certainly result in fewer allergens in the house, there's nothing that can be done prevent private citizens from keeping pets their homes. That said, we (AAFA) will continue to find ways to help address what we can.
@ses1978 Access to your medical records is a right you are guaranteed by law . If your doctor's office is refusing to give you a copy of our records they should be reported (to whom depends on the specific situation and the state you live in). If you'd like to discuss the specifics of this issue, you can call AAFA's Support Center at (800) 727-8462 (or send an email to info@aafa.org ) and we can advise you on a plan of action.
The problem is that companies are too cheap to do it right and/or the ventilation companies are worthless. A local big box pharmacy has air flow in and out of their area. Having their pharmacy at positive pressure would keep all the customer's germs out of the dispensing area. People complain about smoky businesses: one bar I used to go to had 200 people that smoked and their air was clear, whereas you couldn't see across another bar that only had 30 smoking. A local ventilation company...
@ScttLee Your concern is certainly understandable. Doing what you did and being clear about your preference, regardless of cost, is so important (and sometimes easier said than done).
Hello @I Am Curious , I am happy to hear you weathered two different flu virus strains this year without complications! Most healthy people recover from flu without complications (and is what is being seen in coronavirus COVID-19 as well). But when you have asthma, it can put you at higher risk because asthmatic lungs already have swelling. When you have a respiratory infection, your immune system responds by creating more mucus and releasing substances from your cells to fight the virus or...
I just think that N95 masks can be helpful. They found the size of the corona virus and those masks block that size particle and yes it needs a tight seal but that is perfectly possible to teach people what that is. It can help. And high-risk population should know this and have time to irder and waut fir one before it gets widespread. And its possible to make enough for everyone including healthcare workers. And it doesnt need to be mandated fir everyobe, it usnt 100 percent, but it can...
Hi @Shea N95 masks may provide a layer of protection, but they may be hard to breathe through when you have asthma or an infection. They can also be hot, and often masks lead to people touching their face more in an effort to make the mask most comfortable. Wearing a mask can't hurt, but hand washing and sanitizing are going to be our best bet for protection. Thank you for sharing your thoughts. Lorene
Shea - I agree with you. I live in NYC and travel to work on the subway and wearing a n95 mask would greatly decrease my chances of contracting the virus where I am in close proximity to strangers. I do understand that the CDC and WHO are trying to quell the general population from buying/wearing masks when basic hygiene would be more helpful in the long term but they are not protecting those the with the 'underlying health conditions' that they continually mention. This is a situation where...
Hi Ellie and welcome! The situation is continuously evolving and not all areas are impacted the same right now. Social distancing, including working from home, are coming from local health departments. There are several topics on the forum discussing how to prepare - https://community.aafa.org/topic/566946312539943977
I am new to this so I am not sure how to go about this. I am a worried mama right now. My son who is asthmatic just had to go to the ER due to breathing problems. The said it was just his asthma due to no fever. But with it coming to close to comfort near me I am worried and want to know the true symptoms. I hear so many different things that it has me so worried. My daughter is asthmatic too but so far no breathing problems right now. Please can someone give me some possible reassurance...
Hi @Karleeta we completely understand your concern and fear. Fever and a dry cough are symptoms of a virus. If your son is not running a fever it very well could just be an asthma flare. I hope he is feeling better? The best thing you can do is to make sure both your children take their asthma medications as directed. Do they have asthma action plans? Keep them at home as much as possible, wipe down surfaces with disinfectant wipes, wash hands often and keep them from touching their faces.
Lorene, Thank you for responding back to me. He is feeling a little better. Thank you for asking. They do have Asthma Action Plans. They are with grandparents for a couple days while we make sure our home is disinfectant really good. They are already on top with the washing of the hands and using hand sanitizer. We have been stressing that with them. I know their school just postponed it for another week. I know they will be staying home and not go no where. That is another reason why they...
Hi there! I am so glad he is feeling a little better. It can take such a long time to recover from an asthma flare. Sending healing mojo your way! I have been carrying disinfectant wipes with me and literally have one in my hand all the time to open doors and hit elevator buttons. I'm also using my elbows and hips instead of my hands as much as possible. The virus can live on some surfaces for up to 3 days, so a good cleaning sounds like a good plan, and will probably give you some peace of...
Hi PJ55 and BbL, welcome to the AAFA forums! PJ55, have you spoken with your dr about your concerns? BbL, did you express your concerns when the office called today? I know locally some dr's offices are having you "check-in" from your car and you are taken right back to an exam room once you enter the office. You can always inquire about what their current procedures are.
Hi @BbL - we totally understand the concern you are feeling. Below are few things to consider that I hope will help: A recent journal article: COVID-19: Pandemic Contingency Planning for the Allergy and Immunology Clinic states that most asthma and allergy visits can be delayed or conducted by telehealth until the pandemic is over, except for patients with primary immunodeficiency, severe asthma, or are on venom immunotherapy. Feel free to share the article with your daughter's healthcare...
When you block a person, they can no longer invite you to a private message or post to your profile wall. Replies and comments they make will be collapsed/hidden by default. Finally, you'll never receive email notifications about content they create or likes they designate for your content.
Note: if you proceed, you will no longer be following .