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Tagged With "research"

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Re: Patient Involvement in Asthma Research Creates New and Better Treatments

What a great program. I will add this to my Press releases for Text4Help.org. If I can be of any assistance let me know. I will participate in this program as well. Keep up the good work AAFA.org
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Re: Severe Asthma Impacts Relationships, Activities and Emotions

Marie E Natzke ·
What I really find annoying about asthma is it robs me of being able to have a good belly laugh...I starting coughing and lose my breath. So because people don't see me laugh too much they think I'm a crab!!!
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Re: Severe Asthma Impacts Relationships, Activities and Emotions

Melanie Carver ·
@Marie E Natzke , laughter is one of my biggest asthma triggers. It stinks because I consider myself to have a great sense of humor and I'm the type who laughs so hard I have tears streaming down my face. But it comes at a cost, every time.
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Re: Severe Asthma Impacts Relationships, Activities and Emotions

Shea ·
What I dont like about it is that it made me feel less important to people than their pets and that for many years I also treated myself that way and put myself around animals that made me suffer so badly until I had a heart attack due to allergic eosinophils surrounding my heart and choking it, then I took it seriously but still others dont and I struggle to stay strong and remember what happened to me so that that never happens to me again and its difficult because friends get dogs and I...
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Re: Increasing Inhaled Steroids Temporarily Does Not Stop Asthma Flare-Ups in Children

Lisa H ·
My child was diagnosed with Cough-Variant asthma at the age of 2. She has been on steroids since then and she is 9 and she is only at 57 lbs. Right now she takes Advair 250/50 two puffs twice a day, singular and a nasal spray. She has had an allergy test completed and everything came back negative. We have to go back to the allergist in October. With her being negative on all 22 test, how do I go about protecting her. When she has a flare-up, we do her normal meds, treatments twice a day,...
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Re: Increasing Inhaled Steroids Temporarily Does Not Stop Asthma Flare-Ups in Children

Melissa G ·
Oh @Lisa H ! I am so sorry! That has to be very frustrating. Has she ever tried being on an antihistamine? for us if we can get our PND (post nasal drip) in control, our asthma can be better managed. Something to talk to the doctor about. Here is some resources: Allergy Symptoms Allergy Treatment Asthma Over View Asthma Triggers Asthma Treatments Also please join us in the Asthma Support forum
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Re: Asthma and Allergy Research Review, April-June 2017

RSkalak ·
This has some really awesome relevant information for me and the practice I work for!
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Re: Several Factors Can Affect Length of Child’s Hospital Stay After an Asthma Attack

Teri G ·
this topic title gave me anxiety! I couldn't even read the content!
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Re: Several Factors Can Affect Length of Child’s Hospital Stay After an Asthma Attack

Katie D ·
Hi Teri and welcome Do you manage asthma or is it your grandchild (as mentioned in your other reply)?
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Re: Several Factors Can Affect Length of Child’s Hospital Stay After an Asthma Attack

Teri G ·
@Katie D my grand-daughter. We had a scare with this this past year so this was scary to read!
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Re: AAFA Co-Sponsors Congressional Briefing on Asthma and Allergy Research

K8sMom2002 ·
Thanks, AAFA! Research is the key. One day I know that asthma folks will have much better treatment options than we do now.
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Re: Increasing Inhaled Steroids Temporarily Does Not Stop Asthma Flare-Ups in Children

Chery ·
Very informative article.thank you for keeping us updated.my child's dr actually asked me to do that when my son had some cold symptoms as a prevention for his asthma,and it made sense to me to do it,but now I know better thx.as it is I'm very concerned abt my child's growth.
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Re: Increasing Inhaled Steroids Temporarily Does Not Stop Asthma Flare-Ups in Children

K8sMom2002 ·
Chery, welcome! Feel free to start a new topic or join in on a conversation on our support community . It's tough when you're worried about your kiddo's growth.
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Re: Increasing Inhaled Steroids Temporarily Does Not Stop Asthma Flare-Ups in Children

Chery ·
I have noticed the doctors depend more on the meds than on their judgements...when u question them about the meds being prescribed they make u feel like its the right thing to do but when I do my own research it' a totally different story.
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Re: Increasing Inhaled Steroids Temporarily Does Not Stop Asthma Flare-Ups in Children

Shea ·
Interesting. I wonder if adults receive any benefits from pretreating with inhaled steroids as far as preventing flare-ups-- or if they are like the children from this study and do not benefit? I sure with there were more non-steroid options that were efective and safe and less side effects. I know I am working hard with avoidance strategies and keeping indoor air quality in my home good.
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Re: Increasing Inhaled Steroids Temporarily Does Not Stop Asthma Flare-Ups in Children

K8sMom2002 ·
I'm hoping that more research will help us see the role of steroids in treatment -- and maybe different ways of approaching treating asthma.
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Re: Increasing Inhaled Steroids Temporarily Does Not Stop Asthma Flare-Ups in Children

Melissa G ·
@Lisa H How is your daughter doing?
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Re: Increasing Inhaled Steroids Temporarily Does Not Stop Asthma Flare-Ups in Children

Melissa G ·
@Lisa H How did your daughter's allergist's appt go? How has she been doing with all the weather changes?
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Re: FDA Grants Breakthrough Therapy Designation for Tezepelumab for Severe Asthma

Deborah Bartlett ·
I would like to speak with my doctors about this. Good question is...will insurance cover any part of the cost?
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Re: FDA Grants Breakthrough Therapy Designation for Tezepelumab for Severe Asthma

Melissa G ·
Deborah that is a very good question! It is always so hard to know what our insurance is going to do.
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Asthma and Allergy Research With You as an Equal Partner

AAFA Community Services ·
The Asthma and Allergy Foundation of America (AAFA) conducts and promotes patient-centered research to help you. This means your beliefs, preferences and needs are at the center of our research. Your input drives our advocacy work, guides our education programs and supports our community. Recently, we’ve studied the following topics: Symptoms of anaphylaxis in infants and toddlers Eczema burdens and people’s experiences with treatments Impact of COVID-19 on people with asthma and allergy Air...
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FDA Approves Dupixent® (Dupilumab) for Children Aged 6 to 11 Years With Moderate-to-Severe Atopic Dermatitis

AAFA Community Services ·
The U.S. Food and Drug Administration (FDA) approved Dupixent® (dupilumab) for children aged 6 to 11 years with moderate-to-severe atopic dermatitis whose disease is not adequately controlled with topical prescription therapies or when those therapies are not advisable. Dupixent is the only biologic medicine approved for this patient population.
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FDA Accepts Biologics License Application for Xolair® Prefilled Syringe for Self-Administration

AAFA Community Services ·
Novartis today announced that the US Food and Drug Administration (FDA) accepted the company's supplemental Biologics License Application (sBLA) for a new self-administration option for Xolair® (omalizumab) across all approved US indications. If approved, Xolair prefilled syringe would become available for either self-administration by select patients or administration by their caregivers.
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The Power of Your Gift: Improving Lives Through Asthma and Allergy Research

AAFA Community Services ·
When Diana Hanley’s daughter Jamie was a baby, she wheezed every time she got sick. She had her first allergic reaction to eggs at 11 months. Around age 2, she was diagnosed with a peanut allergy. And because of constant hives, many foods were removed from her diet. Her family is now part of research to help families managing asthma and allergies. Read Jamie's story.
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Be Part of a Project to Shape New Eczema Treatments

AAFA Community Services ·
AAFA has joined with four other nonprofit organizations that serve people with eczema to launch “More Than Skin Deep.” This project will inform and shape the development of treatments for eczema. A main part the project is a patient-focused drug development (PFDD) meeting on Sept. 23, 2019, in Washington, D.C.
Blog Post Featured

AAFA Study Shows Surprising Rate and Severity of Atopic Dermatitis in Adults

AAFA Community Services ·
The Asthma and Allergy Foundation of America (AAFA) led a research study called Atopic Dermatitis in America . The purpose of this study is to shed light on the number of adults who deal with this frustrating skin condition. This week, AAFA has released early findings from the report. One surprising find from the study was the number of adults with AD who say it is moderate to severe. As many as 40% of the people surveyed said they had moderate-to-severe AD. Through this study, we hope to...
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Re: Survey: Impacts of COVID-19 and the Flu on People With Asthma and Allergies

Kathy P ·
Hi Chinarider10 - we are so sorry that you somehow received this 3 times. I will look into it.
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Re: Survey: Impacts of COVID-19 and the Flu on People With Asthma and Allergies

Chinarider10 ·
I have received this email three times today. On Thu, Oct 8, 2020 at 4:37 PM Asthma and Allergy Foundation of America < support@aafa.org> wrote:
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Survey: Impacts of COVID-19 and the Flu on People With Asthma and Allergies

AAFA Community Services ·
In March 2020, the World Health Organization classified COVID-19 as a global pandemic. This fall and winter, the Centers for Disease Control and Prevention (CDC) believes flu viruses and the new coronavirus that causes COVID-19 will spread at the same time. The Asthma and Allergy Foundation of America (AAFA) wants to hear about the experiences, perceptions and needs of people with asthma and allergies as they relate to COVID-19 and the flu. We hope to better serve the asthma and allergy...
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Facebook Live Chat: The Latest From the NIH on COVID-19, Asthma and Food Allergies

AAFA Community Services ·
Join AAFA President and CEO Kenneth Mendez as he talks with experts from the National Institute of Allergy and Infectious Diseases (NIAID) of the National Institutes of Health (NIH) about the latest research on COVID-19, asthma and food allergies. When: Tuesday, Nov. 10, 2020, 1:30 – 2 p.m. ET (10:30 – 11 a.m. PT) Where: AAFA's Facebook page – watch the session live or later from your computer, iOS or Android device. RSVP: Click the "Going" icon on our Facebook event to receive a reminder...
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Asthma Impacts on American Indian/Alaska Native People

AAFA Community Services ·
The Asthma and Allergy Foundation of America report on Asthma Disparities in America looks at the burden of asthma on racial/ethnic groups in the United States. Health disparities are preventable health differences between groups of people. Health disparities are higher burdens of illness or death linked to social, economic, and environmental disadvantages. For example, if one group of people has a higher rate of asthma than another group of people, it is an asthma disparity. This month is...
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Re: Asthma Impacts on American Indian/Alaska Native People

Bamidele ·
Even in africa here..it's total war to survive as an individual let alone an asthmatic individual.
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Asthma and Allergies in 2020: Hope and Support During Uncertainty

AAFA Community Services ·
Like many organizations, the Asthma and Allergy Foundation of America (AAFA) has been hit hard by the COVID-19 pandemic. The asthma and allergy community has been heavily impacted by several events of 2020: The public health emergency and economic recession caused by the COVID-19 pandemic Loss of health care or delayed access to medications due to the pandemic Record-breaking wildfires and health impacts related to natural disasters and air pollution Widespread upheaval over racial...
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Re: Wearing a Face Mask to Reduce the Spread of COVID-19 Does Not Affect Oxygen Levels

savail ·
Bleah, I hate to double post, but apparently it's been too long to edit since I was going back over the article to make sure I didn't miss anything. At any rate, just off the top of my head, I notice the following issues with this study (given the information presented in the blog; mayhaps the actual study addresses these?): 1) Number of participants: 223 2) The study was entirely self-report -- no control groups, no accounting for bias, wasn't double-blind, etc. etc. The article makes it...
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Re: Wearing a Face Mask to Reduce the Spread of COVID-19 Does Not Affect Oxygen Levels

savail ·
I mean, now that I'm not pregnant anymore, if you had me sit in an office with a mask and don't require me to talk much or anything, yeah, I can wear it just about forever, which has been a huge relief (I was averaging about 4 minutes while pregnant). But as soon as you introduce asthma triggers (mold, humidity, irritants and activity in my case)--which I note this study does not mention--yeah, no, it drops fast. But that's okay. The next time I get dizzy enough in the grocery store because...
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Re: Wearing a Face Mask to Reduce the Spread of COVID-19 Does Not Affect Oxygen Levels

Nana Pisces ·
Just yesterday at dr appt I walked 3 flight of stairs, I avoid elevators, & by the time I reached floor of dr office I was so out of breath & heart beating so fast. It took few minutes to feel normal. I am out of shape so if in shape I wouldn’t have felt as bad but without mask I know I wouldn’t feel so out of breath Also mondays the only day I work in office, I wear mask all day & takes me some time in morning to not breathe so hard/not practically hyperventilate. Most Monday’s...
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Re: Wearing a Face Mask to Reduce the Spread of COVID-19 Does Not Affect Oxygen Levels

ScttLee ·
Blah blah blah. Probably just a numbers game. Wonder who requested the test. Too many tests are geared to get the answers they want and not true results. The same amount of oxygen does go through a mask, but with breathing issues, it is harder to pull the same volume of air through it. Kind of like a vacuum cleaner trying to suck a rag though. Any activity with a mask on I am huffing and puffing very hard and my chest starts hurting severely. Same activity without a mask, no issues.
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Re: Wearing a Face Mask to Reduce the Spread of COVID-19 Does Not Affect Oxygen Levels

Shea ·
Interesting. Is there a link to the study? I am curious about where it was done (indoor or outdoor, at what temp, and at what exertion level). I tend to do fine indoors with ac for short periods of time, but in heat, add sweat, and exertion.. I find myself needing to tear that mask off and get relief just breathing with it off (I do mask breaks away from others). I am curious if these conditions (time, heat/humidity, exertion level) can be lab replicated and studied in others? (Or if they...
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Re: Wearing a Face Mask to Reduce the Spread of COVID-19 Does Not Affect Oxygen Levels

Kathy P ·
There was no link with the press release or the post info. But this is the JACI article - https://www.jacionline.org/article/S0091-6749 (20)31785-1/fulltext
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Re: Wearing a Face Mask to Reduce the Spread of COVID-19 Does Not Affect Oxygen Levels

Shea ·
Hmm. I don't know. I looked iver the study. I do think they need more information and more numbers representing different groups of asthma and activity levels. It said n=3 on the n95 masks meaning that is the amount if people they are making that judgment on? Because, personally I feel n95 masks and cloth masks do affect breathing differently. I think exertion is the key thing Id want them to look at for asthmatics-- exertion and any tine when asthma is kinda flaring up and breathing can...
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Wearing a Face Mask to Reduce the Spread of COVID-19 Does Not Affect Oxygen Levels

AAFA Community Services ·
Research that will be presented at the 2021 American Academy of Allergy, Asthma & Immunology (AAAAI) Virtual Annual Meeting found that wearing a mask, which helps to slow the spread of COVID-19, does not impact the oxygen saturation of the wearer, regardless of if the individual has asthma or not.
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Re: AAFA's Experts Help FDA and NIH Address Safety of Asthma Medications During Pregnancy and Lactation

Nicholo Atup ·
On Fri, Mar 12, 2021 at 1:59 PM Asthma and Allergy Foundation of America < support@aafa.org> wrote:
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AAFA's Experts Help FDA and NIH Address Safety of Asthma Medications During Pregnancy and Lactation

AAFA Community Services ·
Asthma is one of the most common medical problems that occurs during pregnancy. It can be potentially serious. Asthma can get worse during pregnancy and lead to problems like high blood pressure, early labor and delivery, and low birth weight. Asthma can even cause death. The Centers for Disease Control and Prevention (CDC) tracks pregnancy-related deaths (from any cause) in the United States in a system called the Pregnancy Mortality Surveillance System (PMSS) . The rate of maternal deaths...
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Help Improve and Save Lives by Driving the Future of Asthma and Allergy Research

AAFA Community Services ·
Research has brought us amazing medical discoveries and treatments. But research is also a continual process if we are to pursue better health. Asthma and allergies are complex conditions. Research gives us a better understanding of them. This can lead to new medicines, ways to improve quality of life, and hopefully, cures. And research can be most effective when it centers around the qualities and needs of the patients it aims to serve. The Asthma and Allergy Foundation of America (AAFA)...
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Re: Help Improve and Save Lives by Driving the Future of Asthma and Allergy Research

mdashiquennobi ·
Wish in near future I can involve myself with asthma research and also share my experience as a patient.
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Re: Help Improve and Save Lives by Driving the Future of Asthma and Allergy Research

Melanie Carver ·
Thank you @mdashiquennobi ! Please be sure your AAFA member profile is up to date . When research studies come up that may match your profile information, we will send the opportunity to you via email. Also keep an eye on our blog where we publish surveys that are open to our members to join in. You can change your notifications so that you receive an email every time we add a new blog. Thanks so much for contributing to asthma research!
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Be Part of the Future of Food Allergy Treatment (Video)

AAFA Community Services ·
Update for Oct. 4, 2021: Did you miss the live stream of the PFDD meeting on food allergy? You can watch the recording . You can still share your experiences living with and managing food allergy. Send in your comments by Oct. 9, 2021. We will include your comments in the upcoming food allergy “Voice of the Patient Report.” We will send this report to FDA representatives. By sharing your story, you can help influence the future of treatments for food allergies. SUBMIT YOUR COMMENTS The...
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