AAFA Joins 96 Other Patient Groups to Oppose Rule That Would Harm People With Chronic Conditions
AAFA Community Services
Advocating for Patients
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Blog Post Comment❤️I can only use the Ventolin and the Ins. won't cover it now and gave me Pro Air and it doesn't work for me! Now I don't have an inhaler that works and I'm 66 with Asthma and Bronchitis and a heart condition. The Ins. doesn't care if you drop dead! My doctor did a prior authorization for the Ventolin and they denied because it's not on the formulary list anymore! My cousin said to contact the manufacturer. Does anyone know if that works? I can't afford over $56 for one inhaler since on...
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Blog Post CommentI'm severely allergic to peanuts and cannot use proair. Pro air is manufacture it on the line that has peanut contamination. Whereas ventilon isn't. I am on social security and I cannot afford that price. However maybe it's the part D drug plan you have. If you were to change up you might be able to get it covered. Or your doctor should be getting samples .my doc provides me with samples .
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Blog Post CommentSadaya, thanks for letting us know this information. You were smart to check with your insurance company and see if and how they would cover the generic version. Are you eligible for any of the programs on AAFA's patient assistance page ?
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Blog Post Comment❤️Hi Jeana, cold weather has a lot to do with Javans Asthma. Matter of fact, the change of weather period. When it rains and then gets cold, or when it’s hot and then rain, or when it gets cold alone. Javan body also heats up fast so if we cover him up in layers, we teach him to take it off in school if he gets hot and to not wait too late until he sweats because then the wind may hit him and he will get sick. Have your husband go with you to the doctor and ask the doctor questions while he’s ...
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Blog Post CommentI would like to speak with my doctors about this. Good question is...will insurance cover any part of the cost?
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Blog Post Comment❤️#MyEczemaStory Since childhood, I’ve suffered from Eczema. This skin allergy looks like a rash. Also each section of the skin itches. Medicine is the only way, to treat Eczema. This skin allergy appears on my, arms, thighs and legs. When it’s warm outside I wear, capris plus light jackets. To cover up my Eczema from others. As always very appreciative to share my story! Through the, AAFA, what would I do without this organization? I’m sure other patients strongly feel, this way!
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Blog Post Comment👍This is a great blog post! Be sure to keep hydrated, especially with the heat running more during cold days and nights! Keep your head propped up during the night, to help keep your airway open. Be sure to contact your doctor right away if things just don't seem right. Cover your face with a scarf if going out into the cold. Yes, this means over your mask. Be sure to wash your hands properly when necessary. Follow your medication schedule as directed by your doctor! Also, don't forget to...
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Blog Post Comment❤️👍Bleah, I hate to double post, but apparently it's been too long to edit since I was going back over the article to make sure I didn't miss anything. At any rate, just off the top of my head, I notice the following issues with this study (given the information presented in the blog; mayhaps the actual study addresses these?): 1) Number of participants: 223 2) The study was entirely self-report -- no control groups, no accounting for bias, wasn't double-blind, etc. etc. The article makes it...
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Blog Post Comment❤️I mean, now that I'm not pregnant anymore, if you had me sit in an office with a mask and don't require me to talk much or anything, yeah, I can wear it just about forever, which has been a huge relief (I was averaging about 4 minutes while pregnant). But as soon as you introduce asthma triggers (mold, humidity, irritants and activity in my case)--which I note this study does not mention--yeah, no, it drops fast. But that's okay. The next time I get dizzy enough in the grocery store because...
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Blog Post Comment❤️Just yesterday at dr appt I walked 3 flight of stairs, I avoid elevators, & by the time I reached floor of dr office I was so out of breath & heart beating so fast. It took few minutes to feel normal. I am out of shape so if in shape I wouldn’t have felt as bad but without mask I know I wouldn’t feel so out of breath Also mondays the only day I work in office, I wear mask all day & takes me some time in morning to not breathe so hard/not practically hyperventilate. Most Monday’s...
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Blog Post Comment❤️Blah blah blah. Probably just a numbers game. Wonder who requested the test. Too many tests are geared to get the answers they want and not true results. The same amount of oxygen does go through a mask, but with breathing issues, it is harder to pull the same volume of air through it. Kind of like a vacuum cleaner trying to suck a rag though. Any activity with a mask on I am huffing and puffing very hard and my chest starts hurting severely. Same activity without a mask, no issues.
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Blog Post Comment💯Interesting. Is there a link to the study? I am curious about where it was done (indoor or outdoor, at what temp, and at what exertion level). I tend to do fine indoors with ac for short periods of time, but in heat, add sweat, and exertion.. I find myself needing to tear that mask off and get relief just breathing with it off (I do mask breaks away from others). I am curious if these conditions (time, heat/humidity, exertion level) can be lab replicated and studied in others? (Or if they...
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Blog Post CommentThere was no link with the press release or the post info. But this is the JACI article - https://www.jacionline.org/article/S0091-6749 (20)31785-1/fulltext
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Blog Post CommentHmm. I don't know. I looked iver the study. I do think they need more information and more numbers representing different groups of asthma and activity levels. It said n=3 on the n95 masks meaning that is the amount if people they are making that judgment on? Because, personally I feel n95 masks and cloth masks do affect breathing differently. I think exertion is the key thing Id want them to look at for asthmatics-- exertion and any tine when asthma is kinda flaring up and breathing can...
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Blog Post CommentThis is good information, thank you (and to USA2 below as well!) I am all about the: "have someone else clean for you" option.... Do you think medicare will cover that? I would like a Rosie Robot. I guess I can learn to mix things and make cleaners... I have found some that bother me less than others.. Like the seventh generation brand and the mrs meyers-- I aim for the unscented. Good to know about vinegar not killing covid. Does hot steam? (Did I miss that part?) .....this is motivating me...
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Database Record Comment❤️No one likes to say this to people.. Doctors don't like to say it, but I got so ill from living with cats I was allergic to that I really wish I heard it earlier than I finally did. Now my case was severe-- but it didn't start so severe.. I took a medication called Singulair and it worked so well I thought it was magic, I had like no reactions. I moved in with my then boyfriend who had cats after starting it (I had went to my doctor asking if there was something I could take because my then-...
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Blog Post CommentI just read about a steroid called Dexamethasone being touted as a possible aid in the coronavirus. What do you know about people who are on steroids already having some benefit from them. I am currently on prednisone and was wondering if that would offer any help. Sent from Mail for Windows 10
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Blog Post CommentMy problem with the cloth masks is they all produce lint and I do not want to breathe in lint. I have tried washing and lint rolling them but can't get out all the lint. i tried a surgical mask type but it was not ASTM and even though it is paper, it also produces lint like fibers and I cannot wear it. Is there anywhere i can get true ASTM surgical masks? Any other suggestions?
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Blog Post Comment👍I am unable to wear a mask due to my asthma! Some stores will not allow a person to shop if they don't wear a mask! They want to know why & if I say medical, they ask what my medical issue is and if I have proof of the medical issue! I politely tell them that is between me and my Dr. and is against the ADA & HIPPA! They don't care and say that it is the policy! I would like to know if anyone else has encountered this discrimination and how you handled it!
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Blog Post CommentI understand your frustration. I can't wear any masks so far (still looking for something I can tolerate) You're right, we shouldn't have to carry around our diagnoses on our sleeve. I've given up on any expectation of privacy any more. I suppose the clerks are just trying to do their jobs and have something to tell their supervisors, and maybe feel as safe as possible themselves. They probably would accept a brief "asthma" and a display of an inhaler. Or you could try launching into a long...
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Blog Post CommentAs an essential worker who wears there mask all day here are some tips it’s important to practice wearing the mask before hand . Try it at home in AC . Take small breaks by yourself in a spot where you don’t have to wear a mask . Communicate with your employer and coworkers . Don’t just assume that it’s just you that might have a problem. Keep in mind that wearing masks all day may cause migraines like I get . So have a plan with that ready to go as well . Also try on the masks you plan to...
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Blog Post Comment@LoriC try talking to the stores managers before hand call . Perhaps they can open the store early for you or shop for you . Unfortunately it’s policy and essential employees are trying to protect their health . Also other patrons are trying to do the same . At my job we had passengers who knew they were waiting on a pending Covid test and still got on a plane anyway without a mask . Every situation is not going to be perfect or to your liking but many are in the same boat as you .
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Blog Post Comment❤️Great tips Ben! Especially practicing wearing the mask at home and build up to a longer duration. I've seen this suggested particularly for special needs kids with sensory issues. I'm finding that the fit of the mask is most important for me. It can't press on my nose and I need a mask that is more shaped and suck in against my face as I inhale.
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Blog Post Comment👍The WHO recommendations for types of material for face mask coverings are ill-advised. Have you noticed how many people have pulled their masks down to uncover their noses, or even pulled them down under their chins? It is because they cannot breathe through them. One must use breathable fabrics for a homemade face mask. Fabrics such as cotton, and not polyester or polypropylene. The CDC RECOMMENDS COTTON. On jennifermaker.com, she uses tightly woven quilter’s cotton and heavy duty cotton...
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Blog Post CommentWelcome @Larabe ! That's great that you found a fabric and style combo that works for you. Quilter's cotton and t-shirt material are great choices.
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Blog Post Comment💯@LoriC @Lois Hi! I have moderate to severe asthma controlled on medication and also work at a high volume business where I am working almost constantly. I have found two types of masks work for me (cotton cloth and nylon with an additional cotton cloth layer). Being high risk and considered essential I would prefer you and others wear a mask because it puts me, other people who are high risk, or their families are high risk at ease. Considering you are high risk I would not want you to come...
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Blog Post CommentWe updated this blog post on Aug. 6, 2020, to include studies on how masks may prevent the spread of the new coronavirus and lessen severity of symptoms.
